Introducing the Trekkers

This Friday our three brave and rather crazy challengers are departing for the ultimate challenge; Stok Kangri Summit Trek, reaching 6,114 metres – which is 219 metres HIGHER than Mount Kilimanjaro! Meet the men taking on this tough challenge….. Nick Inspired by his son James who was born with CMN, Nick achieved his goal of…

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CMN Challenge – Stok Kangri 2019

So, on Friday 14th June Nick, Norman and Phil will be departing to kick start the Stok Kangri challenge to summit India’s highest trekkable peak at over 6,000m. They will start in Leh the regional capital in Ladakh one of the most exciting Indian mountain regions. This challenge is part of our 7 challenges on 7…

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AMAZING PRESS COVERAGE!


What a storm of media coverage we have experienced this week in preparation for the ‘HOW DO YOU C ME NOW?’ exhibition launch.  Our coverage has gone worldwide, and the response has been phenomenal. SKY NEWS COVERAGE Link to the article on the Sky News website Link to another article on the Sky News website…

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Alkin’s Story

Introducing Alkin Emirali Alkin is a screenwriter, director, lecturer and an established martial arts instructor.  He was born with a few prominent moles on his face that have proliferated throughout his life. He didn’t meet anyone else affected by CMN until his late thirties, when he connected with Caring Matters Now.  Alkin is one of…

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Callum’s Story

Callum White Callum is an easy going 17-year-old who lives in Gloucestershire.  Callum is studying to be a software developer, with a passion for mountain climbing, cycling and running.  Callum was born with CMN covering the whole of his right arm and hand, along with smaller CMN marks over the rest of his body. Callum…

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Scarlett’s Story

Scarlett Clarke Scarlett is a mature, self-assured and friendly 13-year-old, currently living in a small community within the Cotswolds.  Scarlett is passionate about the Arts, a talented actress and dancer who has recently been signed to a London talent agency.  What sets Scarlett apart from her peers is her CMN, which covers the majority of…

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GET READY TO SET YOUR TV PLANNERS!


We are very excited to announce the confirmed press coverage schedule in the lead up to our ‘HOW DO YOU C ME NOW?’ exhibition launch! Here is the planned schedule of TV, radio, and online coverage expected next week…. get ready to set your TV planners! Monday 11th March BBC Breakfast – 7.40am Live interview…

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UK Exhibition Launch Details and Opening Times

The ‘HOW DO YOU C ME NOW?’ photographic series features 30 children and adults born with Congenital Melanocytic Naevus (CMN), representing 13 countries on 5 continents. The uniquely striking series of images launches at the Oxo Tower London in March 2019, before touring globally. HOW DO YOU C ME NOW?’ aims not only to improve…

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Hope’s Story

2-year-old Hope travelled with her parents all the way from Australia to feature in the HOW DO YOU C ME NOW? exhibition series.  Here you can read Hope’s story, written by her incredible mum, Karyn.  Four years ago, Matt and I were excited at the prospect of meeting our baby.  Not sure if we were…

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Aga’s Story

Agnieszka Pałyska Introducing you to Agnieszka Palyska, travelling from Poland to feature in the ‘HOW DO YOU C ME NOW?’ exhibition series. As you read Agnieszka’s inspirational story, you will understand why the Caring Matters Now Board of Trustees are so grateful to Agnieszka for her involvement in this very special and unique photographic series.…

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Fay’s Story

Fay is 14 years old from Cambridgeshire, a self-assured and friendly teenager who loves to hang out with her friends.  Fay has been dancing since the age of four, competing in solo, with a partner and as part of a team; winning various medals and qualifications in national competitions.  What sets Fay apart from her…

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Katie Arends’ Story

My name is Katie Arends (29) and I was born with CMN covering both my arms, shoulders and head. Between the ages of two and four, I had several operations to remove some of the larger moles from my arms and shoulders. My mum has always worried about whether she made the right decision but…

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Yulianna Yussef

Yulianna Yussef is internationally recognised for raising global positive awareness of CMN through her large social media following on Facebook and Instagram. Caring Matters Now trustees are thrilled to have Yulianna partner with the charity through supporting the ‘HOW DO YOU C ME NOW?‘ exhibition series.

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Happy New Year Sale!

5th-7th July 2019 , Liddington PGL Conference Centre. We have been overwhelmed at the number of bookings for our first ever CMN Conference 5-7th July 2019 at Liddington Conference Centre. So far a fantastic 23 families have booked! Why not join them? Take advantage of our NEW YEAR SALE! BOOK BY 18th JANUARY 2019 TO…

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Nightrider 2019

We are seeking any enthusiastic cyclists or those that just fancy being a cyclist to challenge themselves for Caring Matters Now! Sign up to the Nightrider Challenge 2019 to raise vital funds for our charity. This is a 50km or 100km cycle ride throughout the night. Choose your distance and then choose from one of…

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Caring Matters Now Christmas Gift

The festive period is a time for giving gifts to family and friends, so why not give to Caring Matters Now as you do your Christmas shopping this year? Instead of buying unwanted gifts such as socks or sweets, hankies or hand lotion, why not donate the gift amount to Caring Matters Now.  You will…

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Win a Trip to New York!

Visit our online Fundraising Raffle page NOW for your chance to win 2 return Virgin Atlantic flights to New York! We have very kindly been gifted two return flight tickets to New York on Virgin Atlantic to raffle and raise vital funds. For your chance to win just make your donation of £10 on the Justgiving Fundraising…

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Our Trip to New York

In summer 2013, my mum and I were lucky enough to win two return flights to New York, courtesy of Caring Matters Now and Virgin Atlantic! We decided to use our tickets in 2014, as I was super excited to see New York in the winter! My Dad and brother ended up coming with us…

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Maddy’s Sydney Winery Marathon

7 Challenges on 7 Continents Challenge! This little cutie is my three year old daughter Madeleine. Once you look past her gorgeous eyes and beautiful smile, you may notice she has a CMN over her left eye. She also has a bigger one on her scalp. It’s difficult to tell if or how Maddy will…

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Adult Support

By Jodi Whitehouse Over the past couple of years, the CMN trustees have wanted to develop our adult support for those adults affected by Congenital Melanocytic Naevi. We have made a start on developing this area by holding an annual adult gathering, which includes Dr Kinsler attending to present her work. This also provides a…

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Gemma’s Story

My name is Gemma, I’m 22, grew up in Cambridge but now living and studying in Brighton. I like travelling, music and hope to graduate as a doctor in a few year’s time. But if you meet me, you might notice something a bit different about me; I was born with CMN, in other words…

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Corporate Partnership

Huge thanks to Metro Safety for their generous donation and in raising awareness of CMN: Metro Safety’s 25th anniversary charity initiative raises £3,400 for Caring Matters Now In celebration of Metro Safety’s 25th anniversary year the company set themselves the challenge of raising £20,000, to be split between four worthwhile charities: Caring Matters Now MacMillan…

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2017 Jessica Ma Award Winner & Runner Up

In December 2014, one of our founding trustees Jessica Ma sadly lost her battle with cancer. Jessica was not only a trustee to the Caring Matters Now charity, but also an amazing, courageous and inspirational friend to many in the charity and beyond. Caring Matters Now established the Jessica Ma Award to publicly acknowledge and…

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The exhibition is in full swing now!

The exhibition is in full swing now! We have been overwhelmed with the big response from all those whom so kindly submitted their application to participate in this exciting project. Caring Matters Now charity is working in partnership with the world-renowned photographer Brock Elbank, who is best known for his recent series ‘Freckles’ which appeared in media…

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Become a CMN hero – Monthly Giving

Caring Matters Now is an ever-growing charity! Each year our membership list continually grows, research continually develops and opportunities to raise awareness of CMN continually increases. As long as there is a demand for support, research and awareness, Caring Matters Now will continue to do all we can to fulfil these three main aims. Since…

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Sofia’s Story

On the evening of the 7th July 2017, our beautiful daughter Sofia was born at Liverpool Women’s Hospital. I had an uneventful pregnancy and a straightforward birth and we were completely unaware that Sofia was going to born with a giant CMN. When she was born, the midwife explained that she had a birthmark. I…

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Victoria Hamilton’s Channel Swim

2017 Jessica Ma Award Runner Up It was 8:30am when my phone rang while I was starting my day at work. “Can you get to Dover for 2am Saturday?” “As in tomorrow? No, I can’t get from Pitlochry in that time!”. “oh…. How about Sunday at 2am?” That was what started the journey that I…

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2018 Fundraising

We are delighted to offer you all an opportunity to get involved! We still need to raise a minimum of £100,00 a year to continue the support to all those affected by Congenital Melanocytic Naevi, to fund pioneering research at Great Ormond Street Hospital and The Institute of Child Health and to raise awareness of…

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Yorkshire 3 Peak Challenge

The Yorkshire 3 Peak Challenge (Y3PC) began with an early 7am start on a cloudy Saturday morning on 20th May in the car park to the Golden Lion pub, Horton-in-Ribblesdale in the heart of the Yorkshire Dales. The Y3PC organisers had set up a registration tent in the car park and this is where I…

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Raising Positive Awareness of CMN on a Global Scale!

Caring Matters Now charity is working in partnership with the world-renowned photographer Brock Elbank, who is best known for his recent series ‘Freckles’ which appeared in media outlets worldwide. As part of the ‘Freckles’ series, Brock photographed a young lady from Barcelona who has CMN (Congenital Melanocytic Naevus)

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Ava & Friends Tenner Challenge

Me and my friends, Alex Brown and Kacy Harrison took part in the tenner challenge because we were one of the selected 7 groups to participate. We were given £10 to start a small business, ours was selling cakes with cake toppers on them. We sold cakes every break and lunch for 4 weeks from…

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Elijah’s Story

Elijah’s Story by Hannah Cree Elijah was born on 2nd May 2014, after a healthy, normal pregnancy. We were “ready for this,” we’d planned Elijah, and we’d “had a baby already”- we were “going to really enjoy it this time!” Elijah was born with a 10/12 cm black mark on his scalp, and a deep…

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Holly's Story

Holly’s Story

Our Dearest Holly – by her Mum and Dad Holly was born 1st December 2011. She was our second child, a little sister to Callum who at the time was 18 months old. Holly didn’t have a straight forward delivery and she was three days old when we were informed of her exact condition before…

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Hannah’s Story

Hannah Bostock – by Mum Diane My daughter Hannah was born on the 26th January 2001 with multiple extensive CMN (Congenital Melanocytic Naevus) covering approx. 70 – 80% of her body with about 100 – 200 small naevi (satellites). Hannah was the most precious gift life could give to me. She was a wonderful baby…

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Leah’s Story

Leah Wigmore – by Mum Lynne Our daughter Leah was born 16th June 2005, at Frimley Park Hospital and from the very first moment we laid eyes on her, we knew she was special. It looked as though she was born with a full head of hair, but it turned out to be a CMN,…

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Teens Big Day Out

This is a great team building and social gathering for all those affected by CMN aged 11yrs – 17yrs. This event is open to teens with CMN aged 11 – 17yrs plus one accompanying adult, or friend if aged 17yrs. About: Join us for another fun, team building event at Go Ape Battersea. High Ropes,…

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Online Support

Facebook group for registered members of the Caring Matters Now Charity The charity’s primary aim for social media interaction is for Caring Matters Now members to receive up to date information about the charity, and to give a safe platform for Caring Matters Now members to interact with one another. Therefore, we have created a…

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Launching our 2016 CMN Christmas Campaign

Buy your family & friends a gift this Christmas time, which will last a lifetime! Caring Matters Now has launched a Christmas Gift/Card campaign.   You can make a lasting difference to the lives of those affected by CMN this Christmas time. Rather than spending your money on Christmas gifts or cards that don’t last,…

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20th Anniversary Celebrations!

Join in and help us to celebrate this momentous occasion. 2017 is going to be a huge year for Caring Matters Now……..We will be celebrating our 20th anniversary. Oh how things have come on in 20 years! At the age of 16 years old Jodi and her family were asked to provide support to other…

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Charity Night Raises £1235.70 for CMN

I organized a charity night on Saturday 21st May at Dinnington Resource Centre. The evening included the absolutely fantastic singer, Dave Perkins performing some classic hits from The Rat Pack, Michael Bublé, Gary Barlow and Take That. He went down a storm! I showed a CMN video clip to represent exactly what Caring Matters Now…

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Caring Matters Now International Partnership Scheme

In March 2016 Caring Matters Now hosted our first ever International Support Group Conference in London for all known CMN support groups across the world.  13 CMN support groups were represented from across 5 continents. During the 3-day conference our guests gained an insight into the work of Caring Matters Now by visiting the CMN…

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Nathan’s Story

I found out about Caring Matters Now after a friend got in touch having seen another person with birthmarks as noticeable as my own on a TV clip on the internet. I looked on the net and to my surprise there it was. I had only ever seen a newspaper cutting back when I was 16…

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Dave’s Sponsored Cycle Ride

Fundraiser name: Dave Details of fundraising event: Georgia is just under two years old and was born with a large brown birthmark on her body, known as Congenital Melanocytic Naevus. It is similar to a mole but covers a much larger percentage of her body capacity and doctors say it can lead to complications such…

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2016 London Marathon Winner

Please show Nathan your support in his challenge by donating to his Just Giving page. We would firstly like to say a massive thank you to everyone that registered their interest in running the 2016 London Marathon for Caring Matters Now. It is so good to know what some people really are prepared to put…

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International Support Group Weekend

Caring Matters Now trustees have invited various CMN patient support group leaders from around the world to come together and strengthen the relations we have already established with one another.  The aim of the weekend is to give our guests an insight into the work of Caring Matters Now, including an insight into Dr Kinsler’s…

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James – Tough Mudders

This has been the third year of entering Tough Mudder. However, I challenged myself to two in September; ‘Tough Mudder North West’ on the 12th Sept and the second ‘Tough Mudder London South’ on 27th Sept. The event is a 12 mile obstacle assault course which tests your physical and emotional strengths over a series…

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Christmas Card Competition Winners

The CMN trustees were amazed by the amount of designs submitted for our Christmas Card Competition. It was such a hard task selecting the 8 winning designs! After much deliberation, the following designs were selected to be included in our CMN Christmas Card Packs 2015. Congratulations to all our winners! You can now purchase your…

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Georgia’s Fundraising Fun Day

On June 6th 2015 with the help of family & friends, we decided to organise our 2nd Fundraising fun day. We had such a brilliant time last year we received such amazing support and raised a fantastic £1700. We also managed to raise awareness through local media by having the support of Nottingham Evening Post…

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Brighton Regional Gathering Review

We were very lucky with the weather, it was a real scorcher all morning. We met at a lovely cafe next to a park with a paddling pool right on the beach in Brighton. We were a total of 5 families, with families coming to join us throughout the morning. The children had huge milkshakes…

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Dublin Regional Gathering Review

On 6th June 2015, 8 families from all over Ireland attended the second Dublin regional gathering, organised by Caring Matters Now. For some families it was a chance to catch up again and for others it was their first time attending such an event and they were keen to chat to other families affected by…

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My Daughter Sophie

By Ginny Sometimes when I read the CMN newsletter I am left feeling heartbroken at what some families have had to endure with their children who have been born with CMN. Part of me is very glad I was so ignorant of this condition when my daughter was born because for us it has been…

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Hannah’s Coffee Morning

Our family were all away the weekend that Caring Matters Now had their official coffee morning, so we did ours a bit late! As a family we’ve been keen to raise more funds and more awareness, and as we enjoy opening our home up for friends and family we thought a coffee morning was the…

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Georgia’s Story

January 2013 was the month my husband Gareth and I found out we were going to be having another baby, overjoyed but nervous we kept this to ourselves for the first few months until the first scan, I remember driving to the hospital trying to prepare myself for this appointment (having had a few disappointing…

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Devon Regional Gathering Review

There were thirteen of us who met at Woodlands park on a Saturday morning in June. That’s 3 families. We all got on straight away and I couldn’t wait to go on the water slide, Viking ship and toboggan run with everyone. I could see that everybody was having a good time. We all want…

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Ava & Megan’s Sponsored Silence

To Caring Matters Now My name is Ava, I’m 10 years old. My friend Megan and I did a sponsored silence to raise money for you. The reason we did this was because my brother, Harrison is affected by Congenital Melanocytic Nevi. We managed to raise £170.20 by doing the sponsored silence from midnight until…

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The Jessica Ma Award 2019

In December 2014 one of our founding trustees Jessica Ma lost her battle with cancer. Jessica was not only a trustee to the Caring Matters Now charity, but also an amazing, courageous and inspirational friend to many in the charity and beyond. Due to Jessica’s wise and tireless work in managing the charity’s finances over…

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Amy & Alex Run the Dronfield 10K

Dronfield is the small town where we grew up and they have held a 10k for the past 22 years! This year myself and Alex decided to challenge ourselves to run the tough 6.2mile route for Caring Matters Now. We both completed the course in exactly the same time of 1:03:56. Alex ran the course…

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Ethan’s Story

On the 25th June 2012, our son Ethan was born and it was one of the happiest days our lives.  Ethan was born with what only could be described as a birthmark/mole, which covered about 35% of his body, including the side of his face, his neck and shoulders. When Ethan was born at York…

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Success of 2014 Fundraising

2014 has been an epic year for fundraising and we would like to say a massive thank you to you all for doing your bit! But we must not rest on our laurels! We have seen an increase in corporate support, schools fundraising and so many more individuals getting involved in one way or another.…

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£50,000 Target Reached! THANK YOU

Recruitment for this post will commence shortly and we hope to have news of the newly appointed member of the CMN Research team in the July newsletter. This has been achieved through many different activities such as the CMN Dinner Dance, a very successful marathon run which raised over £10,000 and all of you taking…

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Family Fun Day

“CMN is obviously a very special charity to me and I got together with my friend, Sam who also is a keen fundraiser for The UK Sepsis Trust and CLAPA charities (These two charities mean a lot to her as she nearly lost her life to Sepsis and her eldest daughter was born with a…

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The CMN Charity Dinner Dance – Review

What an amazing night had by all that attended the first ever CMN Charity Dinner Dance on 20th September 2014 at the prestigious Intercontinental Hotel on Park Lane, London. The support we received from small corporates for this event was remarkable and the event could not have happened without such generosity. The very talented YPL…

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A special week for Didier and his mum!

On the 8th July, we had a very special little boy come and visit us here in the UK from Columbia. Didier, who featured in the channel 4 ‘Turtle Boy’ documentary in 2011, captured the hearts of all who watched how he struggled living with his Congenital Melanocytic Neavus covering the majority of his body…

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Didier’s visit to the UK

We are extremely excited to announce that a very special little boy is coming to visit us here in the UK! On the 6th July, Didier and his mum are travelling to the UK and spending a week in London. Didier became a very much-loved little boy across the UK, after the documentary ‘Turtle Boy’…

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Rachel’s Story

On 1st August 2012 at 1.28am our beautiful little daughter Éirinn entered the world in somewhat dramatic fashion. Looking back, I can honestly say that this was a blessing in disguise…after a 21 hour labour, Éirinn was placed on my chest and I noticed a little mark on her left ankle. She didn’t make a…

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Cori raises £300 for CMN

Cori aged 10 had the idea for everyone to make a donation to have a guess on the gender and weight of his mums bump. He managed to raise £300 in donations when his baby sister was born and was able to raise awareness about CMN. He also put a donation box and leaflets around…

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Lily-Mai small change amnesty

Lily-Mai (Year 2) would like to thank all the children, parents and staff of St Marys School, Shackleford who contributed generously in the recent “small change amnesty” organised by Lily-Mai who has CMN. In total, the contributions amounted to a total of £32.08 which is fantastic. Combined with other collections from family, friends and colleagues…

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Charlotte’s Teddytastic Fundraising

The event I organised was a ‘Guess the name of the Teddy’ competition which I held in school for one week at lunch time. People who entered my competition picked a name from a long list and one winning name was drawn by a teacher at the end of the week. I did the competition…

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Phoebe raises awareness of CMN in a big way!

Every year, the school Phoebe attends holds a Speech Competition. The kids have to talk for a maximum of 3 minutes on a topic of their choosing. Phoebe decided it should be about her and her birthmarks. The teacher and the kids – all of whom have never asked Phoebe about her marks because she…

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Genetic Disorder UK Grant

It is with great excitement to announce that Caring Matters Now has been granted £4,000 from Genetic Disorder UK.  This grant is to cover the costs of the CMN Activity Weekend 2014.  The funds will pay for all our children and adult with CMN to attend the weekend free of charge. The CMN trustees are…

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THEY DID IT!

The CMN team took on the skydiving challenge on Saturday 22nd March 2014. The team of 18 met early Saturday morning at Langar Airfield, Nottingham to face their fears! Team members had travelled from all corners of the UK, from as far up as the Highlands, to as low down as Kent! The weather conditions…

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Amanda’s Story

Hi, I’m Amanda and I was born on October 12th 1967 and one of identical twins. A few hours after my birth my parents were told that I had been born with what they called a ‘Swimsuit Naevi’. It covered my back, round my tummy, buttocks and half the tops of both legs. Also, large…

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Holly McCrossan

It is with great sadness that we share the news of Holly McCrossan. On Friday 21st February 2014, Holly (aged 2) passed away after suffering with CMN syndrome. Holly’s parents are overwhelmed from the love and support expressed by you all and they would like to thank everyone who has shown them so much care…

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Ava’s Story

Ava’s Story told by Emma Two years earlier, 2008, I gave birth to my first child, Isaac, which was rather traumatic due to me having a retained placenta so I was apprehensive about giving birth again. However, I was really looking forward to that overwhelming emotion I felt instantly after giving birth to Isaac and…

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News for CMN Adults

Exciting Developments for our CMN adult members This year is a big year for our adult support developments and we are excited to share with you all a little bit about the history of the charity and the plans we have with regards to adult support. As an adult with CMN, I do understand the…

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St Marys School Christmas Charity Appeal

Christmas Charity Appeal

The whole school community of St. Mary’s.  The children are aged 4-11 years. St. Mary’s P. S. Draperstown raise money with a Christmas Charity Appeal every year, during the month of December.  We like to select a charity that is local or one that has close connections with a member of our school community.  This…

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David’s Story

My name is David and I am 41 years of age. Until recently I thought I was the only person to have a CMN and I probably would of until now if it wasn’t for my mum phoning me and telling me she had just watched This Morning and seen a young girl on the…

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Frances’s Story

Hi, my name is Frances and I am a 19 year old female singer/songwriter from Yorkshire & here is my CMN story. For the beginning of my life I can’t really remember too much, so I asked my mum to write her version of events of my upbringing and the struggles she had to face…

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Callum raises money for CMN at local Tesco

Callum has a bathing trunk naevi, so we decided to raise funds for Caring Matters Now. We contacted our local Tesco store who allocated us a slot to collect. Armed with the leaflets and balloons, myself and Callum sat in the foyer of Tesco with our collection buckets. We told people about the condition and…

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Fundraising raffle

At the beginning of January we wrote to various organisations and local attractions to see if they would donate prizes for a raffle. We had an amazing response with 19 prizes being donated in total. We sold tickets to friends, family and my mums work friends and sold pink and blue cupcakes on the day…

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Anna-Grace’s Story

Wes and I had only been married for 9 months when we found out I was pregnant.  We were overjoyed at the thought of having a little one, it was like the icing on the cake.  Anna-Grace made her appearance a week early in the small hours of 23rd March 2004.  When Anna was born…

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Harvey cuts his hair for CMN!

To all the great team at Caring Matters Now, Well as you can see from the photos we finally did it, Harvey’s hair has been cut short. It’s something we always said we would do just before he started school.  May 25th was quite an emotional day for us as a family as Harvey has…

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New Chair of Trustees

As a result of Jodi coming into the exciting post of Chief Executive for Caring Matters Now Support Group, she is now unable to continue being Chair of Trustees, which is the position Jodi has fulfilled since the support group was established. As I’m sure you are aware, the Chair of Trustees has the responsibility…

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Exciting Developments at CMN!

As you are probably already aware, Jodi Unsworth is the original founder of Caring Matters Now back in 1996. Jodi, who was only 15 at the time and her parent’s took on the role of supporting other families affected by CMN. Since then the support group has developed immensely and today has over 350 families…

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7 Challenges On 7 Continents

Yes, you read the title correctly… Caring Matters Now is planning to conquer 7 challenges on 7 continents!  Since 2011 we have been conquering 7 challenges on 7 continents and here is what we have achieved to date… AFRICA – 2011 Mount Kilimanjaro Summit Total raised: £74,342 Read more about this challenge here EUROPE –…

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Mount Kilimanjaro – Done and Dusted!

I am VERY pleased to announce that Mount Kilimanjaro is done and dusted! How amazing the experience was! It is very difficult to summarize this incredible journey, so instead I have decided to include the daily blog updates in the newsletter, along with some photographs. I do hope you enjoy reading all about our adventure!…

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Zelma Jooste & Family

Zelma’s Story

My name is Zelma, I am from South Africa, and this is my personal story. I remember the overwhelming joy my husband and I felt when I found out that I was pregnant. We were married only for 3 months, but we could not wait to start a family. I had a pretty normal pregnancy,…

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Silence is Golden

A sponsored Silence £1000 raised for CMN – by NOT speaking for 24 hours This challenge may sound easy for many, how difficult can it be? But for an experienced sales person not speaking is like asking an accountant to not use a spreadsheet or painter not to use a brush. Paul loves his Rugby…

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Fabulous Fundraisers

Well, you have all been actively fundraising for Caring Matters Now and we would like to say well done and… Thank you, it means so much Here is just a selection of the activities that have been taking place! Tricia (Grandma to Fay) and the staff at Barclays Bank, Cambridge held a fundraising raffle and…

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Participation at the 2011 European CMN Conference

Dr Kinsler will be speaking at the 2011 European CMN Conference to be held in Tübingen, Germany on 6th and 7th May 2011. She will be accompanied by many International Specialists who are focussed on Congential Melanocytic Naevi and Neurocutaneous Melanocytosis. Such collaboration of expertise will hopefully increase the understanding of this rare and potentially…

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Jeans for Genes Awards Grant

We are very pleased to announce that Caring Matters Now has been awarded a £4,000 grant from Jeans for Genes — a national children’s charity which raises money for the care of children with genetic disorders. In return for the grant, we need to raise awareness about Jeans for Genes Day and motivate the public…

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Nevus Outreach Conference in Dallas

Over the past 12 months Caring Matters Now has been developing contact with Nevus Outreach, which is a US based support group for CMN. In November 2009 Mark Beckwith, the Executive Director of Nevus Outreach, attended our CMN Liverpool family day. He was so enthused having met our families and seen what our support group…

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My story by Sheila Mackenzie

Sheila’s Story

I am an older mother; Eva was born when Colin and I were in our forties. She was the little girl we had waited for, for so long! I went into hospital on the eve of my birthday. The labour was long but little did I know that this procedure would go on through the…

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Eva’s Story

My name’s Eva and I am 13 years old. I was born on the 14th May 2003, which is actually my mum’s birthday! My hobbies include; running, cycling, swimming, art, singing, drama, dance and guitar. I want to be an actress, singer and dancer when I am older but I would also like to be…

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How we raise and spend our money

How we raise our money The short answer is – we rely on you! Last year, we were really worried that Dr. Kinsler’s research would stop due to lack of funds. We asked everyone to pitch in and you did! As a result, we had our best fundraising year yet. Over £44,000 was raised. Later…

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Lucy & Fay Hardwidge

Lucy’s Story

I had a very good and healthy pregnancy and I was a little upset at the thought of losing my bump but at the same time extremely excited about meeting our new arrival. I was four days overdue and with my blood pressure rising the decision was made to induce labour, so on Sunday 13th…

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Exciting Developments at Caring Matters Now

Well, as you may have already seen the Caring Matters Now Support Group has developed immensely over the past 2 years, thanks to all the hard work and commitment of the volunteer Trustees, support contacts and the CMN members. The fundraising efforts of all the CMN families has been tremendous and as a result, has…

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Barry’s Story

Hi, my name is Barry, father of Shelley. Shelley is a twin. She and her brother Mark were born on the 30th June 1974 at the Queen Victoria Hospital, South Africa. Although it is 35 years ago, I vividly remember my wife Marion and myself driving down to the Hospital at 5.30am on a Sunday…

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Claire’s Fundraising Story

We first heard about Caring Matters Now through the interview that Jodie Unsworth & Dr. Kinsler did on This Morning and since watching the program we have been in contact with the charity & they have really helped us by showing us that we are not the only ones in a sometimes difficult situation. It…

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Sue’s Fundraising Story

Hi to you all, I am Amy’s Granny Sue and chair of our local University of the Third Age here in Bridlington. Our U3A band, the U3Mix, with the help of a local pub, organised a Party Night for Amy to raise funds for CMN. Quite by chance we learned that the grandson of the…

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The Pink Chicks running for CMN!

In a mad moment Susanna and Clare have decided to make a difference by completing 10 runs and raising £10,000 for Caring Matters Now over a 12 month period – starting June 6th 2009 with a 5k race. The girls thought they should start off gently! As well as the running they are having fun…

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Amy’s tea party

On Saturday 19th July, Amy Gollop, along with her mum and dad, arranged a tea party to help raise funds for the Caring Matters Now Support Group. Amy sold tickets to family and friends for £2. Amy sold cakes along with various crafts and art-work designed by Amy’s aunt and friend which were also available…

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Katy’s Story

My name is Katy, and I am 11, nearly 12, years old. I have a CMN on the back of my right knee. When I was 18 months old, I had an operation to remove it. It was lasered off, using CO2 and Ruby Lasers, and then I had various bandages and dressings for 3…

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Fay’s fundraising coffee morning news

As part of the national coffee morning for Caring Matters Now I decided to hold my own coffee morning at home and invite a few friends!! Well, the numbers increased to over 30 and my house was bursting at the seams with friends, family and neighbours all wanting to give their support to a charity…

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Rachel walks for CMN

On Saturday 11th April 2009, Rachel Ilhan raised over £500 for the CMN research by walking 5 miles along the English coast. Rachel is 11 years old and has CMN covering her back and stomach. Rachel’s mum, Wendy, said “Rachel is a happy, confident, outgoing 11 year old who just happens to have CMN.”. When…

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Jodi Unsworth

Jodi’s Story

I was 6 years old and sitting in the bath playing with small toys, when I looked down at my skin and stared at the big brown, hairy, lumpy birthmark that covered all my back, wrapped around onto my tummy and continued down past my bottom onto the top of my thigh.  As I stared…

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Rhys’s Story

Hello, my name is Lynne, I have a son called Rhys, and he is 10yrs old and has CMN. Until 6 weeks ago we had never met anyone else with this condition. We met Jodi Unsworth in Liverpool, and many other lovely people who had children with this condition; we also met the children, which…

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Scarlett’s Story

My daughter Scarlett was born nearly two years ago with a very rare skin condition called Congenital Melanocytic Naevus (CMN). No one in Cheltenham hospital had ever seen the condition and therefore were unsure where to send Scarlett, as she was not actually ill. To cut a long story short eventually we got to Great…

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