Hello, my name is Sophie, and I was born with CMN predominantly on my face, with lesions on my body. As a child I wasn’t interested in the research and the knowledge behind my condition, however, as I get older it is important to me to understand all aspects of CMN and appreciate how lucky I am.
I have had many different types of treatment on my CMN from a baby until I was 15 years old. I am now 24. I grew up in a small town and was very lucky to be in an environment where people didn’t judge me or leave me feeling excluded. I have 3 older brothers who never treated me any differently and always have my back if needed. They taught me to never be ashamed and gave me the confidence to be myself and comfortable in how I look. My friends were and still are a big part of my confidence, seeing past the CMN and supporting me through any problems. It wasn’t until I was a teenager that I became more self-conscious of my CMN, noticing people staring. This did bother me for a long time growing up through my teens, and sometimes still does now. My friends tell me they don’t even notice my CMN but it’s the first thing I notice when I see photos or look in the mirror. There is always a thought in my head when I meet new people that they must have questions. Of course, for people I know I’m happy to talk about it because it is a big part of me, and a part I’m proud of. Sometimes strangers will comment; the most common comment being a burn, bruise or accident. Although I find these remarks awkward, I try to think of it in a positive way to build a platform to make people more aware of CMN.
I’ve never let my CMN stop me from doing anything. I attended University, gaining an undergraduate and postgraduate degree, whilst playing rugby for and captaining the University side in the BUCS league. I now play for Saracens in the Women’s Premiership (PWR) and England Red Roses. Playing for my country is an amazing achievement and I’m very proud to do so.
I am very lucky to have the support of my family and a great set of friends throughout my life that have supported me, encouraged me and loved me regardless of CMN.
