At the end of 2022, we invited our teen and young adult members to a Young Adults Panel Q&A session. Our Young Adults had so much great experience and insight to share that, despite not having any sign-ups for the event, we decided to record the conversation and make it accessible to all our members. We hope you enjoy the conversation and getting to know this panel of wonderful young adults!
- Young Adults Panel Q&A Session
- ALL CATEGORIES
I’ve got a CMN on my right leg, and I’ve been a member of the charity my whole life. I started fundraising in my teenage years, and then became a part of the Teen and Adult Support Team when I was 23. I love the fact that I now get to help and support other members of the charity, as well as giving back to the Caring Matters Now, which has helped me so much over the years.
Due to the large CMN covering the whole of my right arm, I’ve grown up being a close member of Caring Matters Now. During this time, I’ve been given the opportunity to engage in several charity initiatives including taking part in the “How Do You See Me Now” exhibition as well as supporting several charity meetups.
Now, at 21, I can say that my confidence in living with CMN has grown dramatically in the last few years. This has happened alongside my medical understanding of CMN which was shared during the conversations for this podcast.
My name is Maisie, and I am one of the adult members of Caring Matters Now. I have been a part of the charity for about a year now. My CMN is along my arm which I had surgery on when I was just a toddler. I have loved getting involved in all aspects of the charity and in my spare time I enjoy martial arts and painting.
I’m Andy, I’m 33 years old and live in North London. When I was born with CMN, there was a lot less understanding of the condition, but I was fortunate to be referred to Great Ormond Street within days, and through a chance family connection I met the Unsworths who later set up Caring Matters Now. I hope to be able to use my experiences to help children and young adults who are going through the same challenges I did growing up with CMN.
I’m Sophie and I am 28 years old. I am currently the teens contact for 12–17-year-olds within the charity. I have a CMN on one side of my face and scalp. I have been a member of Caring Matters Now from a very young age and throughout those years the charity has been very helpful to me while growing up. I’m hoping that you find this recording very helpful and if you have any further questions please don’t hesitate to get in touch.