UK research into CMN and CMN syndrome takes place at Great Ormond Street Hospital NHS Foundation Trust (GOSH), and the Francis Crick Institute in London. The research team is led by Professor Veronica Kinsler who works in each institution and is also affiliated to the UCL GOS Institute of Child Health.
CMN have been described over many centuries and, are likely to have existed for near enough as long as humans have been around. As with many other conditions, however, it is only recently that we have been able to start to understand what causes CMN and why it appears in particular people. In theory, with the right combination of patient participation in research studies, adequate funding, and good researchers most conditions in medicine will eventually be understood.
For the most up to date research information, come along to a Caring Matters Now support event where Professor Kinsler will be presenting the latest research findings. Please email [email protected] to gain details of our next event. Publications in medical journals about the CMN research tend to come out in bursts, as many different projects run in parallel. You will find links to the summaries of the publications that are already available here, and to the whole papers if you follow the links.