The CMN volunteer support contacts are key to fulfilling our first and most important aim; supporting those affected by CMN.

All our support contacts are either, a parent of a child affected by CMN or, affected by CMN themselves.

The role of a  Support Contact:

  • Provide a listening ear
  • To signpost you to charity information
  • To support you in your fundraising efforts
  • To connect you with other families local to you
  • To host a regional gathering

Don’t feel alone – get in touch with your local support contact.

Support Contacts Map

Click on the map to view all UK regions

Caring Matters Now Support Contact Details

Jenny Deschenes

Jenny Deschenes

Tel: 07786 458883

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Anne MacIntyre

Anne MacIntyre

Tel: 07786 458883

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My name is Anne MacIntyre and I live in Glasgow, Scotland with Brian and our daughter Erin. I am a trustee for the charity and the regional support contact for Scotland.

I first became involved with the charity when our daughter Erin was born in 2001. Erin was born with a large bathing trunk CMN.

Caring Matters Now was and still is a lifeline to our family and has helped us gain an understanding of CMN. We never feel alone when we are part of the CMN family.
I wanted to give something back to the charity and that was when I became involved.

It would be great to see you all at one of the Scottish regional gatherings.
If you have any questions or just need to talk I am always here for you.

Nick Gollop

Nick Gollop

Tel: 01262 601944

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My name is Nick Gollop and my wife Rosinha and I are your Regional Support Contacts for the Yorkshire and North East region. We live in Bridlington on the East Yorkshire coast. Our eldest daughter Amy was born with a bathing trunk naevus and also has numerous satellite birthmarks all over. She is a happy and popular girl and is doing well at secondary school. She loves music and drama.

We have been attending Caring Matters Now events since Amy was a baby, and the charity has been of great help to all our family, especially Amy. We volunteered to be Regional Support Contacts several years ago in order to provide a focal point for CMN families in our area. We hold an annual family event on the beach where children, families and friends can meet informally, talk and enjoy a day out. We also give support by phone and email.

We hope to make contact with new families through these activities and also regularly attend the Caring Matters Now Support days as well. If you are ever in our area we would love to see you.

Francine Melia

Francine Melia

Tel: 07929 234861

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My name is Francine and I live in Liverpool with my husband Mark and our 2 young girls.   My youngest daughter has a giant CMN that covers part of her back, tummy and upper legs. You can read our Personal Story here.

I am the support contact for North West as I live in Formby, so only a short drive away.  It would be great to see you at our regional gathering over the next 12 months.  Please do get in touch anytime if you have questions about CMN or you just want to talk.

Jodi Whitehouse

Jodi Whitehouse

Tel: 07731 023153

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My name is Jodi and I live in Liverpool with my husband Adam and our 3 young boys. I have a large CMN on my back and only when I was 16 years old did I discover a name for the condition. I am the support contact for Cheshire and North Wales as I live South Liverpool, so only a short drive away. It would be great to see you at a regional gathering over the next 12 months. Please do get in touch anytime if you have questions about CMN or you just want to talk.

Amy Helliwell

Amy Helliwell

Tel: 07786 458883

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Hi I’m Amy and I live in Sheffield with my husband Chris and my two boys Finlay and Max.

Max is the reason I got involved with Caring Matters Now because he has CMN.
Caring Matters Now have been a big support to our family.

As a support contact for the East Midlands area, it would be lovely to meet you at the regional gathering in the next 12 months.

If you have any questions about CMN or just want to talk please get in touch.

Lucy Hardwidge

Lucy Hardwidge

Tel: 07731 023154

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My name is Lucy and I have a daughter, Fay who is 14 years old and has a bathing trunk CMN and numerous CMN all over her body. You can read my story here. I live just outside Cambridge with my husband Anthony and our three children. I am the support contact for Central and East Anglia. We were lucky enough to find Caring Matters Now when Fay was just 7 months old and we attended our first support day. I have seen myself, over the past 14 years, the benefits of meeting others affected by the same condition and how important it can be to have friends alongside you who know how you may be feeling, who have experienced the same as you may have and to have people to share your thoughts and emotions with. It has been invaluable to Fay and our family to have this and we have made lifelong friends. If you ever want to have a chat over a coffee or email me with any questions you may have, please feel free to contact me.

I hope I get the opportunity to meet you all at a regional gathering or support event soon.

Lucy Hardwidge

Lucy Hardwidge

Tel: 07731 023154

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My name is Lucy and I have a daughter, Fay who is 14 years old and has a bathing trunk CMN and numerous CMN all over her body. You can read my story here. I live just outside Cambridge with my husband Anthony and our three children. I am the support contact for Central and East Anglia. We were lucky enough to find Caring Matters Now when Fay was just 7 months old and we attended our first support day. I have seen myself, over the past 14 years, the benefits of meeting others affected by the same condition and how important it can be to have friends alongside you who know how you may be feeling, who have experienced the same as you may have and to have people to share your thoughts and emotions with. It has been invaluable to Fay and our family to have this and we have made lifelong friends. If you ever want to have a chat over a coffee or email me with any questions you may have, please feel free to contact me.

Fiona White

Fiona White

Tel: 07970 731518

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My name is Fiona and I live in Stroud with my two grown up children. My 18 year old son, Callum has a large CMN covering the whole of his right arm. We were fortunate to be signposted to Caring Matters Now when he was a baby and have enjoyed being part of the group whilst Callum was growing up.

I am the support contact for Wales, Herefordshire and Gloucestershire and I live in Gloucestershire.
It would be good to hear from you if you have any questions about CMN or would just like a chat.

It would also be good to see you at a regional gathering.

Sandra Crann

Sandra Crann

Tel: 07786 458883

My name is Sandra and I live in South London with my husband and 3 children. My 14 year-old daughter Maddie has bathing trunk CMN. We first got in touch with Caring Matters Now when Maddie was 4 years-old. It took my husband and I some time before we were ready to reach out and get in touch with other people affected by CMN. However, once we did get in touch with Caring Matters Now, we were so pleased as Maddie and our family unit have gained so much from talking and sharing with others who have had similar experiences.

I am the support contact for the London area, a role I share with Michelle Chance. Please feel free to get in touch with me if you feel like a chat or have any general questions about CMN. Michelle and I organise and attend an annual regional gathering for families who live in the London area.

Michelle Chance

Michelle Chance

Tel: 07786 458883

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Hi. My name is Michelle and I live In London with my husband Ian who is a trustee and treasurer of Caring Matters Now and our son and daughter. Our teenage daughter Jasmin was born with a large CMN on her right cheek. She has gradually had most of it removed through surgery and has had a couple of skin grafts. Jasmin is brave, beautiful and an inspiration. The charity is a huge part of our lives. We joined when Jasmin was 4 and it has helped her confidence so much to meet other children with CMN who have become her friends and part of her support network. I’m keen to help others and share our knowledge and experience. My family and I hope to see you at the regional support day in February. If you have any questions throughout the year, please do get in touch. Looking forward to hearing from you and hopefully meeting you at an event soon.

Louise Lacy

Louise Lacy

Tel: 07786 458883

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My name is Louise and I live in Surrey with my husband Hugo and my two children, James and Charlotte.

Charlotte was born in 2010 with a large scalp CMN and we have been part of the Caring Matters Now charity since she was six months old.

Just before she was two, Charlotte underwent a part-removal (and skin graft)of the main CMN from the side of her face. The surgery took place at Great Ormond Street Hospital and we have been very pleased with the results.

I am the contact for Surrey, Hampshire, Buckinghamshire, West Berkshire and Oxfordshire.

It would be great to see you at one of our regional gatherings, which are organised annually.

Please do get in touch if you have any questions about CMN or you’d just like some friendly support.

Colin Mackenzie

Colin Mackenzie

Tel: 07786 458883

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I’m Colin and I live in Plymouth with my wife, Sheila, and our daughter who is 16 and has CMN. I’m the support contact for south west England. The friendship, care and support over the years from Caring Matters Now and from Dr Kinsler at Great Ormond Street have made a big difference to us, so please feel free to get in touch for any help or information you need, or just for a chat.

Catherine Brown

Catherine Brown

Tel: 07786 458883

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My name is Catherine. My eldest daughter, Luca, is 15 and has a large CMN on the side of her face. She is in her second year of GCSEs now and the first family support day we went to when she was 4 – seems a lifetime away! We have found the support of the group invaluable – particularly the social contact for Luca with friends who also have CMN, as they have developed a relationship over the years at the family activity weekends (we have not missed one yet!). This has been really beneficial in making sure she does not feel like the only person dealing with having CMN. She has other friends who ‘get it’ at all the different stages of growing up. For us too, as her parents, it has been really helpful to meet other families with a child with CMN and share information and chat with other people who understand your concerns and worries.

As regional contact person I am here for you if you would like to talk as it can be really helpful to talk to another parent bringing up a child with CMN. You can contact me by email [email protected]

Hannah Cree

Hannah Cree

Tel: 07786 458883

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Hi! My name is Hannah Cree and I live in Carrickfergus, Northern Ireland, with my husband and our two kids! Our son, Elijah, was born with scalp CMN in May 2014! It has been quite a journey, learning about CMN and teaching Elijah and our family and friends about it too!

You can read more about Elijah here.

I am one of the support contacts for Caring Matters Now in Northern Ireland. I am passionate about supporting people affected by the condition. Just give me a shout if I can be there for you in any way.

Simone Araujo

Simone Araujo

Tel: 07830 341508

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My name is Simone Araujo and I am the International support contact for Caring Matters Now.

I have a son Mateus who is 8 years old and has a bathing trunk CMN. I attended my first CMN Family Day in Cambridge when he was 6 months old. Just after we saw Dr. Kinsler and she told us about this group, and since then we try to attend and help as much as we can and trying to learn more about CMN condition.

We started building our relationship with the CMN family since our first meeting.
We realised they were doing an amazing job, supporting other families, so we decided to do whatever we could to help and thanking them for helping us at the crucial time.

I was delighted when they invited me to join the Support Contact team, despite being a bit hard as english is not my first language. But I promise to try my best.

My son is very confident and a happy boy. At the moment the condition does not affect him at all. He lives a very normal life and attend some activity classes. He keeps himself very active.

I am here for your support, or just to have a general chat about CMN. I can help you to communicate with other members of the group who may have had the same experiences or difficulties as you, or members who live locally to you and may have children of similar age, allowing you the opportunity to build friendships.

We have a large number of registrations from all around the world and we are connected to other CMN groups around the world, so I can help connect you with peope in your own country.

Katie Arends

Tel: 07786 458883

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My name is Katie. I am a maths teacher and I live in Liverpool. I have CMN on my arms, shoulders and scalp. You can find my personal story here. I am the teenage support contact, and always happy to chat to any of our teenagers. I attend the CMN conference each year, as well as the teens fundraising event. It is always great to see so many teens from across the country come together at these events and, over the years, real friendships have been developed. Please get in touch with me anytime and it would be great to see you at an event this year.
Gemma Whyatt

Gemma Whyatt

Tel: 07503 196794

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Hi I’m Gemma, I am from Cambridge, living in Leeds where I am at university. I have large CMN over my back, neck, head and chest, with lots of smaller ones elsewhere. I am the support contact for adults with CMN. I enjoy meeting others with the condition, please feel free to get in touch if you ever want a chat or support.