Ada’s Story
We are so excited to share with you our second ‘how do you C Me Now’ short documentary. Rachelle and Greg share with us how their family has been impacted by CMN since their daughter Ada was born with the condition in 2020 and share their experience of caring for a baby affected by CMN.
On Tuesday 18th June 2024 we had the amazing opportunity to share Ada’s story on BBC Breakfast as the news broke about the incredible breakthrough in the CMN research; a treatment to reverse CMN! To get the treatment into clinical trials, Caring Matters Now is working with the CMN researchers to raise funds and global awareness. Ada’s family have set up a fundraising page to help – you can donate here.
