Evie’s mum kindly wrote to us to tell us about their experience of attending the 25th anniversary outing to Alton Towers. It is heartwarming to know that both Evie and her family enjoyed the opportunity to connect with other CMN families. We look forward to seeing them at future events.
DetailsThis month we featured in an episode of ‘Appearance Matters: The Podcast!’ with the Centre for Appearance Research (CAR).
Bruna and Abbi from CAR asked: “what’s it like to be a young person with CMN?”
Frankie and Mark’s daughter Sofia was born with CMN. They have been active members of Caring Matters Now, with Frankie fulfilling the role of Support contact for our North West Region and the whole family have been getting stuck in to both raising awareness and raising funds. Last year their whole street came together to…
DetailsThroughout 2021, researchers from the Centre for Appearance Research (CAR) have been working in partnership with Caring Matters Now to produce an online support resource for our teenage members. Our teenage members supported the development of the Teens Resource by sharing their insights and thoughts about the content they would find most important and helpful,…
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