Family Fundraising Challenge for 2024…
This year we’ve had nothing but great feedback from our ‘fundraising families’ about the Inflatable 5k Challenge; so we wanted to encourage everyone to get involved in this fun fundraising event!
Details
2 Simple Steps to Join us on our Journey
In light of the recent CMN research breakthrough, we now have lots of work to do as we continue to partner with Prof. Veronica Kinsler. As a charity we are aiming to raise £500,000 over the next 4 years. We are so close to finding a treatment for CMN; you can join us on our…
Details
Leo’s Story
I was born in 1953, the youngest of four. My mother was two months from her 40th birthday. I was born with a CMN covering my neck, my shoulders, and the top half of my back. I also had a large mole on the inside of my thigh and a mole the size of a…
Details
Wow… what a week!
Just one week on from announcing the research breakthrough Prof. Veronica Kinsler has made, we have so much to celebrate; the impact, exposure and response from our community has been overwhelming…
Details