Hello, my name is Cheryl and I was born with CMN all over my body. I did not have CMN on my face when I was born; they started to develop a few weeks after birth. Up until around 11 years old I was a happy child and people staring or asking me questions about…
DetailsWe are excited to announce that Ronnie the Bear has had babies (!!) – and we now have lots of Ronnie the Bear’s ready to be loved by all our members and supporters. You can now purchase your very own Ronnie the Bear.
DetailsWe are excited to launch the Young Ambassadors Programme for all registered young people affected by CMN (13 to 19 years).
DetailsMelanoma arising in people affected by CMN is very difficult to treat. Based on knowledge of the genetics of CMN a drug has been used recently to try to treat melanoma in children, with some good effects, but it is usually not strong enough to reverse the melanoma completely. Other drugs are therefore needed to…
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