In Autumn 2023 we were able to give one of our Young Ambassadors, Maddie, a unique opportunity to write a journal article to be published in the British Journal of Dermatology (BJD). Maddie wrote an article based on a patient’s perspective of living with CMN, entitled ‘Challenges in adult services for a young adult with a rare skin disease’.
DetailsExperiences of CMN Living with Congenital Melanocytic Naevi (CMN), as a rare disease, is different for everyone and therefore how we can best provide support depends on these variable experiences. CMN has many different types leading to differing experiences for those affected. For some, CMN is found solely on the skin as a dark brown…
DetailsA total of 10 online Community events were hosted between October 2023 and March 2024, this included 5 Combined Baby & Toddler and Stay & Play Infant Group events, 1 Stay & Play Infant Group event and 1 Baby & Toddler Group event!
DetailsA total of 10 online Community events were hosted between October 2023 and March 2024, including 3 Gaming events! This group was attended by a group of young people with CMN and siblings, between the ages of 9-13 years, getting together for an hour of gaming each month! The group are well accustomed to Fortnite,…
Details
