Our recent partnership with Run for Charity
This year we want to provide all our members with brilliant NEW opportunities to challenge yourself and raise funds for Caring Matters Now. We have 800 events across the UK you can choose from!
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Rare Disease Awareness Month 2024
Throughout Rare Disease Month, we invited our members and social media followers to DONATE and SHARE this image to raise the profile of CMN as a rare disease!
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Engaging your community
Living with CMN or parenting a child with CMN can feel quite overwhelming and stir up a whole range of emotions such as fear, anxiety, and worry. As a charity, we want to support our members to reach their full potential and help them to develop key social and emotional life skills.
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Maddie becomes the first Young Ambassador to publish a journal article
In Autumn 2023 we were able to give one of our Young Ambassadors, Maddie, a unique opportunity to write a journal article to be published in the British Journal of Dermatology (BJD). Maddie wrote an article based on a patient’s perspective of living with CMN, entitled ‘Challenges in adult services for a young adult with a rare skin disease’.
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