Every year, the school Phoebe attends holds a Speech Competition. The kids have to talk for a maximum of 3 minutes on a topic of their choosing. Phoebe decided it should be about her and her birthmarks. The teacher and the kids – all of whom have never asked Phoebe about her marks because she…
DetailsIt is with great excitement to announce that Caring Matters Now has been granted £4,000 from Genetic Disorder UK. This grant is to cover the costs of the CMN Activity Weekend 2014. The funds will pay for all our children and adult with CMN to attend the weekend free of charge. The CMN trustees are…
DetailsThe CMN team took on the skydiving challenge on Saturday 22nd March 2014. The team of 18 met early Saturday morning at Langar Airfield, Nottingham to face their fears! Team members had travelled from all corners of the UK, from as far up as the Highlands, to as low down as Kent! The weather conditions…
DetailsHi, I’m Amanda and I was born on October 12th 1967 and one of identical twins. A few hours after my birth my parents were told that I had been born with what they called a ‘Swimsuit Naevi’. It covered my back, round my tummy, buttocks and half the tops of both legs. Also, large…
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