Eirinn Story

My beautiful daughter Eirinn was born with a bathing trunk nevus that covered most of her back. Only a handful of satellites were present initially, and over the years more appeared over her arms, legs and face. After an MRI ruled out any neurological complications, we were content that thankfully the CMN was cosmetic only,…

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2021 Reflection

At the start of 2021 we were all living in lockdown, with very little knowledge of what the next 12 months would hold.  For the first half of the year, we continued to be impacted by the pandemic with the ongoing cancellation of all our face-to-face support events and fundraising events.  During this time, we…

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