Online Conference 2020
On 26th – 28th June 2020, we held our first ever online CMN Conference. We welcomed 82 families and individuals with CMN to our programme of events – it was wonderful to see you all!
Details
Your very own Ronnie the Bear
We are excited to announce that Ronnie the Bear has had babies (!!) – and we now have lots of Ronnie the Bear’s ready to be loved by all our members and supporters. You can now purchase your very own Ronnie the Bear.
Details
Young Ambassadors Programme Launch
We are excited to launch the Young Ambassadors Programme for all registered young people affected by CMN (13 to 19 years).
Details
Exciting news for CMN research
Melanoma arising in people affected by CMN is very difficult to treat. Based on knowledge of the genetics of CMN a drug has been used recently to try to treat melanoma in children, with some good effects, but it is usually not strong enough to reverse the melanoma completely. Other drugs are therefore needed to…
Details