Rare Disease Awareness Month 2024
Throughout Rare Disease Month, we invited our members and social media followers to DONATE and SHARE this image to raise the profile of CMN as a rare disease!
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Engaging your community
Living with CMN or parenting a child with CMN can feel quite overwhelming and stir up a whole range of emotions such as fear, anxiety, and worry. As a charity, we want to support our members to reach their full potential and help them to develop key social and emotional life skills.
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Maddie becomes the first Young Ambassador to publish a journal article
In Autumn 2023 we were able to give one of our Young Ambassadors, Maddie, a unique opportunity to write a journal article to be published in the British Journal of Dermatology (BJD). Maddie wrote an article based on a patient’s perspective of living with CMN, entitled ‘Challenges in adult services for a young adult with a rare skin disease’.
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Experiences of CMN
Experiences of CMN Living with Congenital Melanocytic Naevi (CMN), as a rare disease, is different for everyone and therefore how we can best provide support depends on these variable experiences. CMN has many different types leading to differing experiences for those affected. For some, CMN is found solely on the skin as a dark brown…
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