This inspiring book follows the journey of Didi, a young girl with CMN, as she begins her adventure of starting school – navigating curiosity, stares, and ultimately finding her tribe.
After 12 years of service, Val Unsworth, co-founder of Caring Matters Now, is stepping down from her role as Chair of Trustees. After an impressive tenure, Val will be handing over the reins to Tracy Traverse Burley, who has been appointed by the Board as the new Chair of Trustees.
Are you a new member at Caring Matters Now? Join us on Sunday 23rd March at 8pm for our Annual New Members Event online. You’ll find out who we are, what we do and why we do it, as well as meeting some of our team and having an opportunity to ask any questions that you may have also!…
Just one week on from announcing the research breakthrough Prof. Veronica Kinsler has made, we have so much to celebrate; the impact, exposure and response from our community has been overwhelming…
Last year, Maddie completed the Dale Carnegie course, Level TWO of our Young Ambassador Programme!
In Autumn 2023 we were able to give one of our Young Ambassadors, Maddie, a unique opportunity to write a journal article to be published in the British Journal of Dermatology (BJD). Maddie wrote an article based on a patient’s perspective of living with CMN, entitled ‘Challenges in adult services for a young adult with a rare skin disease’.
Level 2 of the programme offers the unique opportunity to complete the prestigious Dale Carnegie Course. Designed to equip you with the communication and human relation skills required to be successful in any setting, this world famous programme of self-development helps the leaders of tomorrow leverage their skills so they can strengthen relationships between colleagues,…
We are proud to announce that Caring Matters Now have become part of the alliance with Face Equality International (FEI) just in time for Face Equality Week 2024.
An introduction to our BIG Weekend From the 7th-9th of July we celebrated our BIG Weekend at Liddington PGL, Swindon, the last time we were able to do this was before the pandemic, in 2019. Due to the Cost-of-Living Crisis we thought carefully about how best to make this event accessible for members and were…
In January we launched our first Equality Diversity and Inclusion (EDI) Focus Group with the aim of reviewing ethnic diversity across our members at Caring Matters Now. Representation of CMN amongst individuals with a darker skin tone is generally poor, in fact dermatologists report that most diagnostic images for skin conditions are on white skin…
