Category Archives: General

In September 2020, Caring Matters Now launched our much-anticipated photographic book
‘HOW DO YOU C ME NOW?’ This stunning book celebrates the beauty and lives of all those affected by CMN and encourages the world to embrace visible differences. Featured within this beautifully presented hardback are the 30 photographic portraits exhibited at the OXO Gallery, London in 2019 as part of our HOW DO…

We would firstly like to say a huge thank you to everyone that registered their interest in running the 2021 Virgin Money London Marathon, for Caring Matters Now. It is encouraging to know what some people really are prepared to put themselves through for our charity, thank you. As we mentioned we are only allocated…

If you are aged 18 years and above, we are seeking your help to develop a list of CMN clinicians in the UK.

Good news! AmazonSmile is now available in the Amazon Shopping app on iPhones and Android phones, making it even easier to support Caring Matters Now!


Researchers from the Centre for Appearance Research at UWE Bristol are looking for people with CMN who are experiencing psychological / social difficulties related to looking different, to test ACT It Out, a prototype mobile app.

Can we please ask you to take a little time to participate and help us all better understand the support needs of you, as parents of children with CMN.

We are pleased to announce that Caring Matters Now has a guaranteed place in the 2021 Virgin Money London Marathon. 


On 26th – 28th June 2020, we held our first ever online CMN Conference. We welcomed 82 families and individuals with CMN to our programme of events – it was wonderful to see you all!

We are excited to announce that Ronnie the Bear has had babies (!!) – and we now have lots of Ronnie the Bear’s ready to be loved by all our members and supporters. You can now purchase your very own Ronnie the Bear.