In December 2014 one of our founding trustees Jessica Ma lost her battle with cancer. Jessica was not only a trustee to the Caring Matters Now charity, but also an amazing, courageous and inspirational friend to many in the charity and beyond. Due to Jessica’s wise and tireless work in managing the charity’s finances over…
With your help we really can make a difference to the lives of those affected by CMN and NCM. Our annual fundraising target is set at £100,000 and this is achievable! Appealing to the general public to raise funds for rare disorders such as CMN is always a challenge, but a challenge not unmanageable for…
What an amazing night had by all that attended the first ever CMN Charity Dinner Dance on 20th September 2014 at the prestigious Intercontinental Hotel on Park Lane, London. The support we received from small corporates for this event was remarkable and the event could not have happened without such generosity. The very talented YPL…
This month we have launched our fundraising campaign of raising £50,000 for the CMN research. We are committed to supporting Dr Kinsler’s research at Great Ormond Street Hospital. Dr Kinsler has spoken to the CMN trustees about the possibility of funding a CMN Fellowship at Great Ormond Street Hospital. This means, Dr Kinsler will have…
Little Acorns Charity Fun Day – Saturday 26 July 2014 The Little Acorns Charity Fun Day is held every year and is a chance for children, parents and friends to come along and have a great day out. With lots of faces being painted, arms sparkling with glitter tattoos, children bouncing on the castle, taking…
By Juan Galbete Luz Nery landed in London on the 8th of July 2014 with a feeling of uncertainty. Coming from a small coastal town in Colombia, Luz travelled to London with her son Didier, who has CMN. Didier was successfully operated on in 2012 in Bogotá, Colombia. It was an operation which required the…
We are extremely excited to announce that a very special little boy is coming to visit us here in the UK! On the 6th July, Didier and his mum are travelling to the UK and spending a week in London. Didier became a very much-loved little boy across the UK, after the documentary ‘Turtle Boy’…
Every year, the school Phoebe attends holds a Speech Competition. The kids have to talk for a maximum of 3 minutes on a topic of their choosing. Phoebe decided it should be about her and her birthmarks. The teacher and the kids – all of whom have never asked Phoebe about her marks because she…
It is with great excitement to announce that Caring Matters Now has been granted £4,000 from Genetic Disorder UK. This grant is to cover the costs of the CMN Activity Weekend 2014. The funds will pay for all our children and adult with CMN to attend the weekend free of charge. The CMN trustees are…
The CMN team took on the skydiving challenge on Saturday 22nd March 2014. The team of 18 met early Saturday morning at Langar Airfield, Nottingham to face their fears! Team members had travelled from all corners of the UK, from as far up as the Highlands, to as low down as Kent! The weather conditions…
