Didier’s visit to the UK

We are extremely excited to announce that a very special little boy is coming to visit us here in the UK! On the 6th July, Didier and his mum are travelling to the UK and spending a week in London. Didier became a very much-loved little boy across the UK, after the documentary ‘Turtle Boy’…

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Phoebe raises awareness of CMN in a big way!

Every year, the school Phoebe attends holds a Speech Competition. The kids have to talk for a maximum of 3 minutes on a topic of their choosing. Phoebe decided it should be about her and her birthmarks. The teacher and the kids – all of whom have never asked Phoebe about her marks because she…

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Genetic Disorder UK Grant

It is with great excitement to announce that Caring Matters Now has been granted £4,000 from Genetic Disorder UK.  This grant is to cover the costs of the CMN Activity Weekend 2014.  The funds will pay for all our children and adult with CMN to attend the weekend free of charge. The CMN trustees are…

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THEY DID IT!

The CMN team took on the skydiving challenge on Saturday 22nd March 2014. The team of 18 met early Saturday morning at Langar Airfield, Nottingham to face their fears! Team members had travelled from all corners of the UK, from as far up as the Highlands, to as low down as Kent! The weather conditions…

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Holly McCrossan

It is with great sadness that we share the news of Holly McCrossan. On Friday 21st February 2014, Holly (aged 2) passed away after suffering with CMN syndrome. Holly’s parents are overwhelmed from the love and support expressed by you all and they would like to thank everyone who has shown them so much care…

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