Professor Veronica Kinsler and her researchers at the Francis Crick Institute and Great Ormond Street Institute of Child Health have published an article in the Investigate Dermatology Medical Journal detailing a huge breakthrough in their CMN research work.
Hanna, 7, was born with a large dark lesion covering her back, stomach and thighs. Her skin is very itchy and dry with large lumpy modules making everyday life debilitating, and she can find it difficult to sleep at night. Hanna’s skin samples have been used to help advance the CMN research and develop a…
Elijah, aged 10, was born with CMN on his scalp, which is very dry, fragile and cuts easily. He has to be monitored constantly and be very careful in the sun. In 2023 Elijah had a melanoma scare which was thankfully a false alarm. His family don’t want to remove the CMN by surgery, but…
3-year-old Ada has 70% of her body covered in CMN mostly on her neck and back. Ada loves swimming and the sea, but needs to take extra precautions for her CMN which includes extra sun protection and wearing good clothing. Her CMN can also be very itchy and painful. When she was just 4 months old, she…
This paper suggests “…it might be more important for people with CMN to make sure their Vitamin D levels are good than it is for the average person…” and “that all children with CMN should take a Vitamin D supplement throughout the winter months.” To read the full paper follow this link. Watch an explanation…
Throughout Rare Disease Month, we invited our members and social media followers to DONATE and SHARE this image to raise the profile of CMN as a rare disease!
Expressions of CMN As a rare disease, Congenital Melanocytic Naevi (CMN) has many expressions. For some CMN expresses itself solely on the skin as a dark brown birthmark covering up to 80% of the body and in varying forms, such as flat, raised, lumpy, hairy, itchy and fragile. Raised and lumpy CMN can be limiting…
Alongside funding the groundbreaking CMN research carried out by Professor Kinsler and the research team at UCL GOS Institute of Child Health and The Francis Crick Institute, as a charity, we also work hard at supporting our members who participate in the CMN research projects, such as those who’ve give skin biopsies and those trialling…
Caring Matters Now is delighted to share a publication from Jodi Whitehouse (Caring Matters Now CEO), Professor Veroinca Kinsler, Morgan B Zolkwer and Saskia C. Sanderson focused on the incredible impact from our ‘how do you C Me Now?’ photographic exhibition series in the Paediatric Dermatology medical journal. BACKGROUND: The importance of photographs in social…
When a picture is worth a thousand words! For those who have been involved in the life of Caring Matters Now from the very beginning, you will understand the significance this photograph is to the life of our charity. Jodi (middle) was born with CMN in 1980. For the first 15 years Jodi and her…
