Caring Matters Now launches a new support Initiative at Great Ormond Street Hospital for Children
As from July 2021 Caring Matters Now support literature will be available to pick up from the CMN clinic at Great Ormond Street Hospital.
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As from July 2021 Caring Matters Now support literature will be available to pick up from the CMN clinic at Great Ormond Street Hospital.
Although living with CMN can be challenging, it’s can also be positive for some young people too. Ella Guest, a researcher at the Centre for Appearance Research in Bristol, has been working with Caring Matters Now to find out more about the positive aspects of living with CMN by using photographs.
Melanoma arising in people affected by CMN is very difficult to treat. Based on knowledge of the genetics of CMN a drug has been used recently to try to treat melanoma in children, with some good effects, but it is usually not strong enough to reverse the melanoma completely. Other drugs are therefore needed to…
Caring Matters Now has been asked to support a worldwide survey which will be focusing on the well-being of children and adolescents born with Congenital Melanocytic Nevus. The study is being conducted by a team at University Children’s Hospital Zurich, Switzerland, working in collaboration with Nevus Outreach and Naevus Global. This survey will provide important…
William Baird is a molecular genetics graduate who is starting work in Veronica Kinsler’s team today at the UCL Institute of Child Health. His 3 year PhD project is funded entirely by Caring Matters Now. William will be working on cells in the laboratory trying to correct the gene mutation that causes CMN. This is…
The Organization Committee of the SPINOZA CHAIR, set up by the Amsterdam University Association on behalf of the Faculty of Medicine of the University of Amsterdam, has awarded the SPINOZA CHAIR for 2015 to Dr Veronica Kinsler (MD, PhD, MRCPCH) from October 26 until October 29, 2015. The chair was established in 1995 by the…
We are absolutely delighted to announce that Dr Veronica Kinsler has won the coveted Great Ormond Street Hospital 2015 Child and Family Award. This award is given for a very special individual or team nominated by a patient, parent or carer, who is a great team member and is always welcoming, helpful and expert. There…
Dr Kinsler’s CMN research work has recently been awarded one of five prestigious equal poster prizes at the Academy of Medical Sciences meeting for Clinician Scientists 2013, which is a national meeting of clinical researchers. This was awarded for the recent NRAS findings which you can read more about here. Caring Matters Now is a…
There has been a very exciting new finding in our study of the genetics of congenital melanocytic naevi (CMN). We have discovered that the genetic change (called a mutation) that causes CMN and neurocutaneous melanosis is in a gene called NRAS. We found this gene mutation in 80% of the cases we…
Research carried out at Great Ormond Street Hospital and the UCL Institute of Child Health has identified that the gene causing red hair – melanocortin-1-receptor (MC1R) – is more common in children with Congenital Melanocytic Naevi (CMN), a rare form of birthmark. CMN are rare brown or black birthmarks which cover up to 80% of…