Elijah, aged 10, was born with CMN on his scalp, which is very dry, fragile and cuts easily. He has to be monitored constantly and be very careful in the sun. In 2023 Elijah had a melanoma scare which was thankfully a false alarm. His family don’t want to remove the CMN by surgery, but hope for a way to remove the risk of melanoma. Elijah and his family have done lots of fundraising over the years which has helped to advance the CMN research.
On hearing Professor Kinsler’s research breakthrough of developing a potential treatment in the lab to reverse CMN, Elijah’s mum said “It is like a dream come true that we are so close to having a treatment. There are no words to describe how grateful we are for the impact this could have on our family in the future and on others affected by CMN”.
To find out more about the research breakthrough and to join us on this exciting journey, click here.
