Caring Matters Now provides support to all members, whether you are on a journey of considering treatment or removal and, whether you have visible CMN or not! There are many factors which may influence the choice to remove or treat CMN, every CMN is different meaning that this is a unique decision for every member.
We want to provide an open forum of support for our members to help you make an informed choice. We work closely with Professor Kinsler and her medical team, and therefore able to signpost members to accurate information about treatment options. We are also gathering data on consultants across the UK who are treating adults with CMN, which we can share with our members. We may also be able to connect members to others who have had a similar types of treatment. Please reach out to us for surgical support by emailing email@example.com
We also have a volunteer Parent Contact Louise Lacy who is available to chat with you about the process and experiences of surgical treatment.