The NHS England Rare Disease Collaborative Network for Mosaic Disorders (RDCN-MD) is a network of local dermatologists who understand Mosaic Disorders, such as CMN.
The RDCN is led by Great Ormond Street Hospital (GOSH) Paediatric Dermatology and has an adult centre at St Thomas’ Hospital, London, home to the Adult CMN Clinic. Alongside these specialised services, the RDCN has established a national network of local dermatologists. To read more about the network click here.
Further information about RDCN-MDs
The overarching aims of the RDCN-MDs are in line with those for all RDCNs:
- to increase knowledge and understanding of mosaic disorders
- to progress research
- to improve patient experience
The specific aims of the RDCN-MDs are:
- to reduce mean time to first seeing a specialist
- to reduce the number of trips to the specialist centre
- to improve access to accurate clinical and genetic diagnosis
- to improve transition from paediatric to adult services, and to provide new adult access to specialist opinion
- to improve coordination of care between the RDCN and local hospitals
