Adult Community

Caring Matters Now is committed to supporting all those affected by Congenital Melanocytic Naevi. We are continually enhancing the support we offer to our 18+ community. This webpage gives details of the support available to our adult members.

Who can I talk to?

We have a dedicated adult support team, consisting of three adults living with CMN; Kathy, Stacey & Maddie. The adult support team are available to listen to our adult members, chat, share experiences and answer any questions you may have regarding living with CMN.

Maddie Valleekanthan

Maddie Valleekanthan – 17-24 years

Maddie is our Young Adults Contact, providing support for those aged 17–24 years.

Hi, I’m Maddie, I have bathing trunk CMN, and I live in South East London. I am extremely grateful for the opportunity to be a Young Adults Contact! I want to give back to Caring Matters Now for supporting me and my family for as long as I can remember and helping to shape me into the confident and competent person I am today.

I am studying archaeology, the study of ancient civilisations, at the University of Nottingham. My passion is to understand people, whether that be people from thousands of years ago or the people I meet in my day-to-day life. I also work part-time as a care assistant in a care home, providing emotional and physical support, and personal care to people with specific health needs. I love chatting with the residents and listening to their unique and diverse stories and experiences. The support and opportunities I have received my entire life from Caring Matters have helped me get to where I am today.

My goals are to help Caring Matters Now cater towards young adult members and to showcase to young adults with CMN all the support and opportunities which are available to them through the charity. Please reach out to me to share your stories, experiences and any queries. I am excited to get to know you and I promise that I will be there to listen and support you in any way I can!

Stacey Dordov

Stacey

My name is Stacey and I live in Kent. I have a bathing trunk nevus and multiple satellites on my face and body. I found Caring Matters Now when I went to the How Do You C Me Now exhibition in March 2019. Until that day I had never met anybody with the same skin as me. However, since I have made some wonderful new friends, attended gatherings and learned a lot about CMN through this amazing charity. You can read my personal story here.

I am proud to be an Adult Support Contact for Caring Matters Now and if you have any questions or you just want to chat please contact me.

I found Caring Matters Now when I went to the How Do You C Me Now exhibition in March 2019. Until that day I had never met anybody with the same skin as me.”

Kathy Neal

Kathy Neal

I’m Kathy and I live in Hampshire. I have a bathing trunk CMN with several satellite naevi.

I was in my late 50’s when I discovered Caring Matters Now and the amazing work they are doing in supporting those with CMN and their families. Meeting others with CMN and hearing their stories has had a positive effect on the way I see my skin. Developing friendships within the Caring Matters Now community continues to encourage me.

Please do get in touch with me, Katy or Stacey, if you have any questions or would appreciate chatting to someone with similar experience. We are here to listen and would like to get to know you.

You can contact Kathy, Stacey & Maddie by emailing support@caringmattersnow.co.uk.

How can I meet others members?

  • By attending our annual adult gathering and annual conference
  • By joining our age specific groups on our WhatsApp Community
  • Through our social media community, including a private Facebook group dedicated to adult members

For details about any of the above opportunities please email support@caringmattersnow.co.uk.

How can I receive CMN medical advice?

    • Accessing a local clinician who is part of the Rare Disease Collaborative Network
    • Attending the Adult CMN Clinic at Guys and St Thomas’ if you are experiencing any new problems with your CMN
    • Attending our Annual Research Presentation led by Professor Kinsler’s Team
    • Ordering a copy of the CMN medical booklet

For details about any of the above opportunities please email support@caringmattersnow.co.uk.

How can I receive CMN research updates

  • By attending the adult gatherings and annual conference whereby you will receive research updates
  • Receiving our annual news magazine INSPIRE, which includes a written annual research review
  • Browsing through the Research section on our website, which includes links to medical papers and updates

For details about any of the above opportunities please email support@caringmattersnow.co.uk.

How can I gain support relating to every day CMN concerns

  • Contacting our adult support team who are more than happy to answer your questions via email or phone call
  • Downloading or ordering hard copies of our support literature
  • Attending the adult gathering and annual conference where you will have many opportunities to talk to others and ask questions

For details about any of the above opportunities please email support@caringmattersnow.co.uk.