In conjunction with Rare Disease Day 2022, Caring Matters Now is partnering with CMN patient support groups across the world to raise global awareness of Congenital Melanocytic Naevus.
As from July 2021 Caring Matters Now support literature will be available to pick up from the CMN clinic at Great Ormond Street Hospital.
Although living with CMN can be challenging, it’s can also be positive for some young people too. Ella Guest, a researcher at the Centre for Appearance Research in Bristol, has been working with Caring Matters Now to find out more about the positive aspects of living with CMN by using photographs.
Are you living with CMN aged 11-17 years? If so, we would love you to take part in a new research study the Centre for Appearance Resarch has launched called TABI (Teen Appearance and Body Image) which aims to explore young people’s experience of appearance and body image using an online survey.
Are you Somali and do you have CMN affecting the face? Researchers at the Centre for Appearance Research want to find out about your experiences!
Caring Matters Now have successfully secured a grant from VTCT Foundation and have teamed up with Centre for Appearance Research to create a resource to support young people with Congenital Melanocytic Naevi. This will be a freely available resource that contains important information about CMN and how to cope with common issues that young people with CMN may face.…
In conjunction with Rare Disease Day 2021, Caring Matters Now is partnering with CMN patient support groups across the world to raise global awareness of Congenital Melanocytic Naevus… and you can join in with us!
Melanoma arising in people affected by CMN is very difficult to treat. Based on knowledge of the genetics of CMN a drug has been used recently to try to treat melanoma in children, with some good effects, but it is usually not strong enough to reverse the melanoma completely. Other drugs are therefore needed to…
Caring Matters Now has been asked to support a worldwide survey which will be focusing on the well-being of children and adolescents born with Congenital Melanocytic Nevus. The study is being conducted by a team at University Children’s Hospital Zurich, Switzerland, working in collaboration with Nevus Outreach and Naevus Global. This survey will provide important…
William Baird is a molecular genetics graduate who is starting work in Veronica Kinsler’s team today at the UCL Institute of Child Health. His 3 year PhD project is funded entirely by Caring Matters Now. William will be working on cells in the laboratory trying to correct the gene mutation that causes CMN. This is…
