Caring Matters Now has been asked to support a worldwide survey which will be focusing on the well-being of children and adolescents born with Congenital Melanocytic Nevus. The study is being conducted by a team at University Children’s Hospital Zurich, Switzerland, working in collaboration with Nevus Outreach and Naevus Global.
This survey will provide important information about families affected by a CMN, with the goal of improving their quality of life in the future.
Caring Matters Now would like to invite parents of a child born with a nevus (from birth to 18 years) and adolescents born with a nevus (ages 14-25 years) to participate in this study. All families can participate, whether the nevus of the child has been removed or not. The only requirement is that participants understand English.
Participation in this study is entirely voluntary and responses remain anonymous. To participate in this study, people who are affected by CMN will complete a web-based online survey. Adolescents will be asked about their nevus and their well-being. Parents will be asked about their child’s and their own well-being.
To take part in this study, please follow this link.
Please try to fill out the survey before the end of December 2016. If enough data can be collected until then, a preview of preliminary data will be shared at the Nevus Outreach Conference.
To read more information about the survey please click here.
If you have any questions or comments, you can contact the researchers directly at: [email protected].