Elijah, aged 10, was born with CMN on his scalp, which is very dry, fragile and cuts easily. He has to be monitored constantly and be very careful in the sun. In 2023 Elijah had a melanoma scare which was thankfully a false alarm. His family don’t want to remove the CMN by surgery, but…
Details3-year-old Ada has 70% of her body covered in CMN mostly on her neck and back. Ada loves swimming and the sea, but needs to take extra precautions for her CMN which includes extra sun protection and wearing good clothing. Her CMN can also be very itchy and painful. When she was just 4 months old, she…
DetailsWe recently heard from one of our members, Kathy, who shared with us a recent event she held with her friends to share with them all about her CMN and Caring Matters Now. Take a read to find out what she got upto.
DetailsThis paper suggests “…it might be more important for people with CMN to make sure their Vitamin D levels are good than it is for the average person…” and “that all children with CMN should take a Vitamin D supplement throughout the winter months.” To read the full paper follow this link. Watch an explanation…
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