Our annual conference took place on Friday 7th May – Sunday 9th May. During the 3-day conference we hosted 16 online events via zoom, catering for 598 members. Every family and individual who registered to attend the conference received a welcome pack in the post, which include event goodies for the specific events they were…
DetailsTeens O2 Challenge Written by Hannah Cree, Support Pathway Practitioner Pretty soon into my role as Support Pathway Coordinator, I heard about the Teens Challenge at ‘Up at the o2.’ This sounded like a real challenge for our teens and one that would require courage! I knew I wanted to support our teens on the…
DetailsMy name is Tracy, and I am the proud mother of Rey, the little beauty that’s on the cover of this edition of INSPIRE. Around 70% of Rey’s body has CMN ranging from small to large. Before I begin talking about Rey, it feels that my story wouldn’t be complete if I didn’t start with…
DetailsAs from July 2021 Caring Matters Now support literature will be available to pick up from the CMN clinic at Great Ormond Street Hospital.
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