Our Warrior Princess Written by Eve’s mum – Sabrina After a perfectly normal pregnancy, our second daughter Eve was born on the 8th August 2018 with a very rare skin condition called Congenital Melanocytic Naevi (CMN). This condition is caused by a gene mutation resulting in more than half of Eve’s body being covered in…
DetailsVeronica Kinsler is now the Professor of Paediatric Dermatology and Dermatogenetics at Great Ormond St Hospital for Children and the UCL Institute of Child Health. This is great recognition for the CMN research and will continue to raise awareness of CMN worldwide. Some other very exciting news about CMN research at GOSH is that the…
DetailsBe the first to get your hands on our brand new ‘how do you C Me Now™’ tees! To celebrate the huge success of our global awareness campaign #howdoyouCMeNow, we have produced branded clothing for all ages. We want to continue raising positive awareness of CMN, giving a clear message to the world; to love…
DetailsThis Friday our three brave and rather crazy challengers are departing for the ultimate challenge; Stok Kangri Summit Trek, reaching 6,114 metres – which is 219 metres HIGHER than Mount Kilimanjaro! Meet the men taking on this tough challenge….. Nick Inspired by his son James who was born with CMN, Nick achieved his goal of…
Details
