Brighton Regional Gathering Review

We were very lucky with the weather, it was a real scorcher all morning. We met at a lovely cafe next to a park with a paddling pool right on the beach in Brighton. We were a total of 5 families, with families coming to join us throughout the morning. The children had huge milkshakes…

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Dublin Regional Gathering Review

On 6th June 2015, 8 families from all over Ireland attended the second Dublin regional gathering, organised by Caring Matters Now. For some families it was a chance to catch up again and for others it was their first time attending such an event and they were keen to chat to other families affected by…

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Sophie’s Story

Hello, my name is Sophie, and I was born with CMN predominantly on my face, with lesions on my body. As a child I wasn’t interested in the research and the knowledge behind my condition, however, as I get older it is important to me to understand all aspects of CMN and appreciate how lucky…

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Hannah’s Coffee Morning

Our family were all away the weekend that Caring Matters Now had their official coffee morning, so we did ours a bit late! As a family we’ve been keen to raise more funds and more awareness, and as we enjoy opening our home up for friends and family we thought a coffee morning was the…

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