Caring Matters Now research update September 2023
During this session at our BIG Weekend, we had the privilege of hosting an annual research update from Professor Veronica Kinsler, world leading specialist in CMN.
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Henry’s Story
Hello, my name is Henry. I am 11 years old. I have only known about Caring Matters Now for just over a year, we’ve been to two regional meetings and the Big Weekend 23. My mum wanted to help me understand, that although my Nan has CMN too, that there are other kids that have CMN…
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Work experience with our Young Ambassador, Maddie
During the week of the 17th-21st July, Maddie, one of our Young Ambassadors joined us for work experience. Throughout her week with us, Maddie had the opportunity to get involved in many aspects of charity life and put new skills into practice including public speaking, journal writing and producing a ‘walk-through’ of the website. Opportunity to…
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Anna’s Story
Meet Anna “By being true to myself, I created a welcoming space for others to be themselves too.” My name is Anna, I am 15 years old, and I was born with CMN. My CMN covers my whole right arm and hand as well as that, I have multiple large naevi on my back and…
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