Share your story on Rare Disease Day, 28th February 2022
In conjunction with Rare Disease Day 2022, Caring Matters Now is partnering with CMN patient support groups across the world to raise global awareness of Congenital Melanocytic Naevus.
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Caroline’s Story
Caroline Caroline – Now My name is Caroline, I am 20 years old, from Austria Vienna and was born with a giant heart shaped CMN on my lower back. I never met someone with a CMN and thought for a long time that I am the only one (until I discovered the thing called internet),…
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Maddie’s Story
My name is Maddie, I’m 15 and was I was born with CMN. Living with CMN, although it is very challenging at times, has also been a positive experience for me. When I was little my parents always told me that I had ‘special skin’, and this helped me with my confidence around my CMN…
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Eirinn Story
My beautiful daughter Eirinn was born with a bathing trunk nevus that covered most of her back. Only a handful of satellites were present initially, and over the years more appeared over her arms, legs and face. After an MRI ruled out any neurological complications, we were content that thankfully the CMN was cosmetic only,…
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