On 6th June 2015, 8 families from all over Ireland attended the second Dublin regional gathering, organised by Caring Matters Now. For some families it was a chance to catch up again and for others it was their first time attending such an event and they were keen to chat to other families affected by…
DetailsHello, my name is Sophie, and I was born with CMN predominantly on my face, with lesions on my body. As a child I wasn’t interested in the research and the knowledge behind my condition, however, as I get older it is important to me to understand all aspects of CMN and appreciate how lucky…
DetailsOur family were all away the weekend that Caring Matters Now had their official coffee morning, so we did ours a bit late! As a family we’ve been keen to raise more funds and more awareness, and as we enjoy opening our home up for friends and family we thought a coffee morning was the…
DetailsJanuary 2013 was the month my husband Gareth and I found out we were going to be having another baby, overjoyed but nervous we kept this to ourselves for the first few months until the first scan, I remember driving to the hospital trying to prepare myself for this appointment (having had a few disappointing…
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