Royal College of General Practitioners (RCGP)
This year, our charity CEO- Jodi, Tracy (a Caring Matters Now Trustee) and Michelle (our North West Regional Contact) attended the RCGP in Liverpool.
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Self-Advocacy Pack for young adults with Congenital Melanocytic Naevus (CMN)
The transition to adult services can be a daunting process for patients and parents. We created this Self-Advocacy Pack to empower our young adult members with the knowledge and tools needed to effectively manage their healthcare, communicate their needs, and navigate adult healthcare services.
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London and South East Regional Gathering April 2024
In April 2024, we decided to merge the Regional Gatherings for London and the South East, and host a joint get-together at The Science Museum in London.
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The NHS England Rare Disease Collaborative Network for Mosaic Disorders (RDCN-MD)
The NHS England Rare Disease Collaborative Network for Mosaic Disorders (RDCN-MD) is a network of local dermatologists who understand Mosaic Disorders, such as CMN.
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