Ada was born with CMN in 2020, and just a few weeks later I spoke to another parent of a child with CMN and they told me about Caring Matters Now. We have been involved ever since. In 2022 I took on being one of the regional contacts for the charity and I am so proud to help many over the East Anglia region.
In 1999, we had a daughter, Holly, born with CMN. Very sadly for us all, complications related to her condition proved to be terminal and she passed away aged 10 months. 25 years on, we are still very much in touch with the charity and who’d have thought that the seeds sown all those years ago would have grown into such a strong and beneficial entity.
My connection to Caring Matters Now began when my daughter, Alicia, was born with Congenital Melanocytic Naevus (CMN). From the very start, the charity was there for us, offering support, guidance, and a sense of community that meant so much.
