Our recent partnership with Run for Charity
This year we want to provide all our members with brilliant NEW opportunities to challenge yourself and raise funds for Caring Matters Now. We have 800 events across the UK you can choose from!
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Rare Disease Awareness Month 2024
Throughout Rare Disease Month, we invited our members and social media followers to DONATE and SHARE this image to raise the profile of CMN as a rare disease!
Engaging your community
Living with CMN or parenting a child with CMN can feel quite overwhelming and stir up a whole range of emotions such as fear, anxiety, and worry. As a charity, we want to support our members to reach their full potential and help them to develop key social and emotional life skills.
Maddie becomes the first Young Ambassador to publish a journal article
In Autumn 2023 we were able to give one of our Young Ambassadors, Maddie, a unique opportunity to write a journal article to be published in the British Journal of Dermatology (BJD). Maddie wrote an article based on a patient’s perspective of living with CMN, entitled ‘Challenges in adult services for a young adult with a rare skin disease’.
Experiences of CMN
Experiences of CMN Living with Congenital Melanocytic Naevi (CMN), as a rare disease, is different for everyone and therefore how we can best provide support depends on these variable experiences. CMN has many different types leading to differing experiences for those affected. For some, CMN is found solely on the skin as a dark brown…
Online Baby and Toddler Community
A total of 10 online Community events were hosted between October 2023 and March 2024, this included 5 Combined Baby & Toddler and Stay & Play Infant Group events, 1 Stay & Play Infant Group event and 1 Baby & Toddler Group event!
Online Gaming Community
A total of 10 online Community events were hosted between October 2023 and March 2024, including 3 Gaming events! This group was attended by a group of young people with CMN and siblings, between the ages of 9-13 years, getting together for an hour of gaming each month! The group are well accustomed to Fortnite,…
Mia is the second Young Ambassador to complete the Dale Carnegie course, Level TWO of our Young Ambassador Programme!
Level 2 of the programme offers the unique opportunity to complete the prestigious Dale Carnegie Course. Designed to equip you with the communication and human relation skills required to be successful in any setting, this world famous programme of self-development helps the leaders of tomorrow leverage their skills so they can strengthen relationships between colleagues,…
Supporting members through Medical Trials
Alongside funding the groundbreaking CMN research carried out by Professor Kinsler and the research team at UCL GOS Institute of Child Health and The Francis Crick Institute, as a charity, we also work hard at supporting our members who participate in the CMN research projects, such as those who’ve give skin biopsies and those trialling…
Announcing our alliance with Face Equality International
We are proud to announce that Caring Matters Now have become part of the alliance with Face Equality International (FEI) just in time for Face Equality Week 2024.
