Caring Matters Now research update September 2023
During this session at our BIG Weekend, we had the privilege of hosting an annual research update from Professor Veronica Kinsler, world leading specialist in CMN.
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Henry’s Story
Hello, my name is Henry. I am 11 years old. I have only known about Caring Matters Now for just over a year, we’ve been to two regional meetings and the Big Weekend 23. My mum wanted to help me understand, that although my Nan has CMN too, that there are other kids that have CMN…
Work experience with our Young Ambassador, Maddie
During the week of the 17th-21st July, Maddie, one of our Young Ambassadors joined us for work experience. Throughout her week with us, Maddie had the opportunity to get involved in many aspects of charity life and put new skills into practice including public speaking, journal writing and producing a ‘walk-through’ of the website. Opportunity to…
Anna’s Story
Meet Anna “By being true to myself, I created a welcoming space for others to be themselves too.” My name is Anna, I am 15 years old, and I was born with CMN. My CMN covers my whole right arm and hand as well as that, I have multiple large naevi on my back and…
Ireland Regional Gathering review – 1st April 2023
It’s a long way to Tipperary! Or is it? As we were planning our annual support event for Dublin Zoo in October this year, we had a brainwave to host another gathering somewhere else in the country. Ireland’s not that big and with our positive “sure it’ll be grand!” attitude, we embarked on hosting two…
Northern Ireland Regional Gathering June 2023
Following the success of our Ireland Regional Gathering to Tayto Park last year, we wanted to choose another venue which would have lots of activities to offer for our members and their families. Jungle NI offered a multi activity package with the opportunity to challenge a Rodeo Bull, bounce on bungee trampolines, pedal on the…
North West and North Wales Regional Gathering 2023
We had a great time at the NW and N Wales regional gathering at Farmer Ted’s in April. The children had plenty of things to do, from shows, tractor rides, petting the animals, slides, outdoor play areas, maze, jumping pillows, etc. The weather was very kind to us and we all gathered for a lovely…
British Association of Dermatologists (BAD) Annual Conference in Liverpool
This News Article was written by our South East Regional Contact, Diane. Earlier this month I had the honour of representing Caring Matters Now on our stand at the British Association of Dermatologists (BAD) Annual Conference in Liverpool. For three days, professionals whose daily work revolves around all matters skin-related came to the ACC, Liverpool…
British Association of Dermatologists (BAD) Conference 2022
Last year I had the opportunity to attend the BAD conference in Glasgow along with my mum. This was a great opportunity to meet and discuss CMN with dermatology specialist working in our hospitals all over the country. Throughout my day at the conference not only was I able to share my own personal journey…
2023 Big Weekend
An introduction to our BIG Weekend From the 7th-9th of July we celebrated our BIG Weekend at Liddington PGL, Swindon, the last time we were able to do this was before the pandemic, in 2019. Due to the Cost-of-Living Crisis we thought carefully about how best to make this event accessible for members and were…
