I was born in 1953, the youngest of four. My mother was two months from her 40th birthday. I was born with a CMN covering my neck, my shoulders, and the top half of my back. I also had a large mole on the inside of my thigh and a mole the size of a…
Just one week on from announcing the research breakthrough Prof. Veronica Kinsler has made, we have so much to celebrate; the impact, exposure and response from our community has been overwhelming…
Professor Veronica Kinsler and her researchers at the Francis Crick Institute and Great Ormond Street Institute of Child Health have published an article in the Investigate Dermatology Medical Journal detailing a huge breakthrough in their CMN research work.
Professor Veronica Kinsler and her researchers at the Francis Crick Institute and Great Ormond Street Institute of Child Health have published an article in the Investigate Dermatology Medical Journal detailing a huge breakthrough in their CMN research work.
Hanna, 7, was born with a large dark lesion covering her back, stomach and thighs. Her skin is very itchy and dry with large lumpy modules making everyday life debilitating, and she can find it difficult to sleep at night. Hanna’s skin samples have been used to help advance the CMN research and develop a…
Elijah, aged 10, was born with CMN on his scalp, which is very dry, fragile and cuts easily. He has to be monitored constantly and be very careful in the sun. In 2023 Elijah had a melanoma scare which was thankfully a false alarm. His family don’t want to remove the CMN by surgery, but…
3-year-old Ada has 70% of her body covered in CMN mostly on her neck and back. Ada loves swimming and the sea, but needs to take extra precautions for her CMN which includes extra sun protection and wearing good clothing. Her CMN can also be very itchy and painful. When she was just 4 months old, she…
We recently heard from one of our members, Kathy, who shared with us a recent event she held with her friends to share with them all about her CMN and Caring Matters Now. Take a read to find out what she got upto.
This paper suggests “…it might be more important for people with CMN to make sure their Vitamin D levels are good than it is for the average person…” and “that all children with CMN should take a Vitamin D supplement throughout the winter months.” To read the full paper follow this link. Watch an explanation…
My Journey to Self-Acceptance: Embracing My Uniqueness By Naava Agnes, age 23 Growing up in a small village in Kampala, Uganda, I was born with a congenital melanocytic nevus (CMN) on my face. It was a constant reminder that I was different, and it seemed like the world was always staring back at me. People…
