Hi to you all, I am Amy’s Granny Sue and chair of our local University of the Third Age here in Bridlington. Our U3A band, the U3Mix, with the help of a local pub, organised a Party Night for Amy to raise funds for CMN. Quite by chance we learned that the grandson of the…
In a mad moment Susanna and Clare have decided to make a difference by completing 10 runs and raising £10,000 for Caring Matters Now over a 12 month period – starting June 6th 2009 with a 5k race. The girls thought they should start off gently! As well as the running they are having fun…
On Saturday 19th July, Amy Gollop, along with her mum and dad, arranged a tea party to help raise funds for the Caring Matters Now Support Group. Amy sold tickets to family and friends for £2. Amy sold cakes along with various crafts and art-work designed by Amy’s aunt and friend which were also available…
My name is Katy, and I am 11, nearly 12, years old. I have a CMN on the back of my right knee. When I was 18 months old, I had an operation to remove it. It was lasered off, using CO2 and Ruby Lasers, and then I had various bandages and dressings for 3…
Dr. Kinsler has been awarded a grant by the Wellcome Trust to fund research into CMNs until August 2012. The Wellcome trust is a UK charity organization that funds innovative biomedical research to support the brightest scientists with the best ideas. The grants awarded are hotly contested with many more applicants than grants given out.…
As part of the national coffee morning for Caring Matters Now I decided to hold my own coffee morning at home and invite a few friends!! Well, the numbers increased to over 30 and my house was bursting at the seams with friends, family and neighbours all wanting to give their support to a charity…
On Saturday 11th April 2009, Rachel Ilhan raised over £500 for the CMN research by walking 5 miles along the English coast. Rachel is 11 years old and has CMN covering her back and stomach. Rachel’s mum, Wendy, said “Rachel is a happy, confident, outgoing 11 year old who just happens to have CMN.”. When…
Caring Matters Now has been selected as recipient of a £4,000 grant from Jeans for Genes — a national children’s charity which raises money for the care of children with genetic disorders. Every half an hour a baby is born in the UK with a genetic birth defect or genetic disorder which could seriously affect…
Even amongst health professionals, awareness of CMN is low because it is a rare condition, so our first challenge as parents was to find information about the condition and what treatments were available. Fortunately, we discovered the Caring Matters Now website and were directed to the centre of expertise at Great Ormond Street Hospital led…
