Centre for Appearance Research Project
Are you Somali and do you have CMN affecting the face? Researchers at the Centre for Appearance Research want to find out about your experiences!
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Phoebe’s Story
My name is Phoebe, I am 16 and I was born with a giant CMN on my face and satellites all over my body. The process to remove my facial nevus began when I was one week old and finished when I was six. I have a skin grafted face and over 500 satellite Nevi.…
Introducing a new team member to our Adult Support Team
We are excited to announce further developments in our adult support team with the introduction of a new support contact for our older teens and young adult members.
Katy’s Story
I’m Katy, and the last time I wrote my story for Caring Matters Now, I was 12 years old and had just started at secondary school. Since then, I’ve danced with the English Youth Ballet, competed with my university dance teams, and worked at Camp America. More recently, I’ve worked on a cruise ship and…
Complete this quick survey and help us create a support resource for young people with CMN
Caring Matters Now have successfully secured a grant from VTCT Foundation and have teamed up with Centre for Appearance Research to create a resource to support young people with Congenital Melanocytic Naevi. This will be a freely available resource that contains important information about CMN and how to cope with common issues that young people with CMN may face.…
Raise awareness on Rare Disease Day 2021
In conjunction with Rare Disease Day 2021, Caring Matters Now is partnering with CMN patient support groups across the world to raise global awareness of Congenital Melanocytic Naevus… and you can join in with us!
Stepping up for CMN
A huge THANK YOU and CONGRATULATIONS to all those who have completed a monthly challenge so far!
Elspeth’s Story
As a fifteen-year-old with CMN, which covers my back arms and legs, I have endured many hard times as well as amazing and inspiring experiences. Having CMN evidently makes me stand out when I don’t necessarily want to and makes people stare when (you guessed it) I don’t want people to stare. Having these special…
Jessica Ma Award – 2020 Winner & Runner Up
After much deliberation we are delighted to announce that the winner of the 2020 Jessica Ma Award is……..
