Dr. Kinsler has been awarded a grant by the Wellcome Trust to fund research into CMNs until August 2012. The Wellcome trust is a UK charity organization that funds innovative biomedical research to support the brightest scientists with the best ideas. The grants awarded are hotly contested with many more applicants than grants given out.…
As part of the national coffee morning for Caring Matters Now I decided to hold my own coffee morning at home and invite a few friends!! Well, the numbers increased to over 30 and my house was bursting at the seams with friends, family and neighbours all wanting to give their support to a charity…
On Saturday 11th April 2009, Rachel Ilhan raised over £500 for the CMN research by walking 5 miles along the English coast. Rachel is 11 years old and has CMN covering her back and stomach. Rachel’s mum, Wendy, said “Rachel is a happy, confident, outgoing 11 year old who just happens to have CMN.”. When…
Caring Matters Now has been selected as recipient of a £4,000 grant from Jeans for Genes — a national children’s charity which raises money for the care of children with genetic disorders. Every half an hour a baby is born in the UK with a genetic birth defect or genetic disorder which could seriously affect…
Even amongst health professionals, awareness of CMN is low because it is a rare condition, so our first challenge as parents was to find information about the condition and what treatments were available. Fortunately, we discovered the Caring Matters Now website and were directed to the centre of expertise at Great Ormond Street Hospital led…
I was 6 years old and sitting in the bath playing with small toys, when I looked down at my skin and stared at the big brown, hairy, lumpy birthmark that covered all my back, wrapped around onto my tummy and continued down past my bottom onto the top of my thigh. As I stared…
I was aware that the midwives were not handing her to me right away. The midwife mentioned the baby was a bit slow to cry so she was going to administer some facial oxygen and did so. Then I heard the baby cry but they still did not bring her to me. The two midwives…
