In conjunction with Rare Disease Day 2022, Caring Matters Now is partnering with CMN patient support groups across the world to raise global awareness of Congenital Melanocytic Naevus.
Caroline Caroline – Now My name is Caroline, I am 20 years old, from Austria Vienna and was born with a giant heart shaped CMN on my lower back. I never met someone with a CMN and thought for a long time that I am the only one (until I discovered the thing called internet),…
My name is Maddie, I’m 15 and was I was born with CMN. Living with CMN, although it is very challenging at times, has also been a positive experience for me. When I was little my parents always told me that I had ‘special skin’, and this helped me with my confidence around my CMN…
My beautiful daughter Eirinn was born with a bathing trunk nevus that covered most of her back. Only a handful of satellites were present initially, and over the years more appeared over her arms, legs and face. After an MRI ruled out any neurological complications, we were content that thankfully the CMN was cosmetic only,…
My brother has CMN on his back, we have attended multiple Caring Matters Now events before. Having a sibling with a difference has taught me to accept others who have differences. I like that we get to meet new people through the charity & we get to go to fun places. With my DofE, I…
At the start of 2021 we were all living in lockdown, with very little knowledge of what the next 12 months would hold. For the first half of the year, we continued to be impacted by the pandemic with the ongoing cancellation of all our face-to-face support events and fundraising events. During this time, we…
Teachers Testimonial In late August 2021 a little 6-year-old boy who has Congenital Melanocytic Naevus (CMN) started in my class. CMN is a skin condition that can be life-threatening, presenting itself in large, dark brown birthmarks which can cover up to 80% of the body. I had read several articles about CMN in preparation for…
This year, the North West and North Wales gathering was at Formby National Trust, where we got to have a picnic lunch, walk around the famous pinewoods- den building and completing a nature scavenger hunt, and to top a fantastic day off, we had had an ice cream from the van at the end! Thankfully, the…
I remember as if it had happened only yesterday… My husband phoned me very excited when he saw a big poster in the City advertising ‘’How do you C Me Now” exhibition. I couldn’t believe what he was telling me! Until that day I have never seen or met anyone with a birthmark like mine!…
In 2022, as we celebrate our 25th year of Caring Matters Now, we would love to see as many people as possible helping us to raise the essential funds that we need to be able to continue to provide support to families affected by CMN for another 25 years, and more. Could you join us in STEPPING UP FOR CMN by taking on a ’25’ Challenge?
