Didier’s visit to the UK

We are extremely excited to announce that a very special little boy is coming to visit us here in the UK! On the 6th July, Didier and his mum are travelling to the UK and spending a week in London. Didier became a very much-loved little boy across the UK, after the documentary ‘Turtle Boy’…

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Rachel’s Story

On 1st August 2012 at 1.28am our beautiful little daughter Éirinn entered the world in somewhat dramatic fashion. Looking back, I can honestly say that this was a blessing in disguise…after a 21 hour labour, Éirinn was placed on my chest and I noticed a little mark on her left ankle. She didn’t make a…

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Cori raises £300 for CMN

Cori aged 10 had the idea for everyone to make a donation to have a guess on the gender and weight of his mums bump. He managed to raise £300 in donations when his baby sister was born and was able to raise awareness about CMN. He also put a donation box and leaflets around…

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Lily-Mai small change amnesty

Lily-Mai (Year 2) would like to thank all the children, parents and staff of St Marys School, Shackleford who contributed generously in the recent “small change amnesty” organised by Lily-Mai who has CMN. In total, the contributions amounted to a total of £32.08 which is fantastic. Combined with other collections from family, friends and colleagues…

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Charlotte’s Teddytastic Fundraising

The event I organised was a ‘Guess the name of the Teddy’ competition which I held in school for one week at lunch time. People who entered my competition picked a name from a long list and one winning name was drawn by a teacher at the end of the week. I did the competition…

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Phoebe raises awareness of CMN in a big way!

Every year, the school Phoebe attends holds a Speech Competition. The kids have to talk for a maximum of 3 minutes on a topic of their choosing. Phoebe decided it should be about her and her birthmarks. The teacher and the kids – all of whom have never asked Phoebe about her marks because she…

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