Caring Matters Now trustees have invited various CMN patient support group leaders from around the world to come together and strengthen the relations we have already established with one another. The aim of the weekend is to give our guests an insight into the work of Caring Matters Now, including an insight into Dr Kinsler’s…
This has been the third year of entering Tough Mudder. However, I challenged myself to two in September; ‘Tough Mudder North West’ on the 12th Sept and the second ‘Tough Mudder London South’ on 27th Sept. The event is a 12 mile obstacle assault course which tests your physical and emotional strengths over a series…
We recently received the wonderful news that Caring Matters Now would be a Sporting Bears Motor Club benefiting charity in 2015. Thanks to The Ranchhod family who have a son with CMN and John Redshaw from the “Midland Bears” for the nomination, we will be receiving support from the Sporting Bears Motor Club “Dream Rides”…
The Organization Committee of the SPINOZA CHAIR, set up by the Amsterdam University Association on behalf of the Faculty of Medicine of the University of Amsterdam, has awarded the SPINOZA CHAIR for 2015 to Dr Veronica Kinsler (MD, PhD, MRCPCH) from October 26 until October 29, 2015. The chair was established in 1995 by the…
The CMN trustees were amazed by the amount of designs submitted for our Christmas Card Competition. It was such a hard task selecting the 8 winning designs! After much deliberation, the following designs were selected to be included in our CMN Christmas Card Packs 2015. Congratulations to all our winners! You can now purchase your…
When Yasmin started nursery at age 3 in 2013, I provided her Key worker with the information booklet I had downloaded from the Caring Matters Now website. I spoke about things that they should look out for, how they could support her and the complications that could arise as a result of CMN. Her teacher…
UPDATE – Our 3 CMN Dads did it!!!!! So, on the 20th September 2015, three incredible dads of children with CMN, reached the summit after a gruelling 9 days of trekking and a final 8 hours of glacier climb with crampons & ropes. These guys are incredible! This was a gruelling challenge, mentally and physically…
As this was our 2nd Coffee and Cake event, we were slightly more organized! We gathered a small team of family and friends to help out on the day with tombola, raffle, puppet show and bouncy castle, as well as a fun disco and face painting donated by Starz Party. We used our local church,…
On June 6th 2015 with the help of family & friends, we decided to organise our 2nd Fundraising fun day. We had such a brilliant time last year we received such amazing support and raised a fantastic £1700. We also managed to raise awareness through local media by having the support of Nottingham Evening Post…
‘Oh what a lovely day, the day we went to Bridlington’ …and so it turned out to be! The families came, the food was eaten, the sand sparkled, the sea was freezing but best of all the sun came out. All week the Gollop family watched the weather forecast. A Beach Day in the rain…
