Rachel walks for CMN

On Saturday 11th April 2009, Rachel Ilhan raised over £500 for the CMN research by walking 5 miles along the English coast. Rachel is 11 years old and has CMN covering her back and stomach. Rachel’s mum, Wendy, said “Rachel is a happy, confident, outgoing 11 year old who just happens to have CMN.”. When…

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Jodi Unsworth

Jodi’s Story

I was 6 years old and sitting in the bath playing with small toys, when I looked down at my skin and stared at the big brown, hairy, lumpy birthmark that covered all my back, wrapped around onto my tummy and continued down past my bottom onto the top of my thigh.  As I stared…

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Rhys’s Story

Hello, my name is Lynne, I have a son called Rhys, and he is 10yrs old and has CMN. Until 6 weeks ago we had never met anyone else with this condition. We met Jodi Unsworth in Liverpool, and many other lovely people who had children with this condition; we also met the children, which…

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Scarlett’s Story

My daughter Scarlett was born nearly two years ago with a very rare skin condition called Congenital Melanocytic Naevus (CMN). No one in Cheltenham hospital had ever seen the condition and therefore were unsure where to send Scarlett, as she was not actually ill. To cut a long story short eventually we got to Great…

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