Great Ormond Street Hospital Children’s Charity Blog have recently published a post on their website entitled ‘Speaking to the experts on congenital melanocytic nevus‘. You can read the post by CLICKING HERE.
Research carried out at Great Ormond Street Hospital and the UCL Institute of Child Health has identified that the gene causing red hair – melanocortin-1-receptor (MC1R) – is more common in children with Congenital Melanocytic Naevi (CMN), a rare form of birthmark. CMN are rare brown or black birthmarks which cover up to 80% of…
I am VERY pleased to announce that Mount Kilimanjaro is done and dusted! How amazing the experience was! It is very difficult to summarize this incredible journey, so instead I have decided to include the daily blog updates in the newsletter, along with some photographs. I do hope you enjoy reading all about our adventure!…
My name is Zelma, I am from South Africa, and this is my personal story. I remember the overwhelming joy my husband and I felt when I found out that I was pregnant. We were married only for 3 months, but we could not wait to start a family. I had a pretty normal pregnancy,…
A sponsored Silence £1000 raised for CMN – by NOT speaking for 24 hours This challenge may sound easy for many, how difficult can it be? But for an experienced sales person not speaking is like asking an accountant to not use a spreadsheet or painter not to use a brush. Paul loves his Rugby…
Maja is two years old and wonderfully enthusiastic about life. She was so keen to come into this world that when it was time to be born (on a frosty December night) she allowed mum and dad a full 45 minutes to get dressed, arrange childcare for her sister, drive to hospital, get admitted to…
Well, you have all been actively fundraising for Caring Matters Now and we would like to say well done and… Thank you, it means so much Here is just a selection of the activities that have been taking place! Tricia (Grandma to Fay) and the staff at Barclays Bank, Cambridge held a fundraising raffle and…
Dr Kinsler will be speaking at the 2011 European CMN Conference to be held in Tübingen, Germany on 6th and 7th May 2011. She will be accompanied by many International Specialists who are focussed on Congential Melanocytic Naevi and Neurocutaneous Melanocytosis. Such collaboration of expertise will hopefully increase the understanding of this rare and potentially…
We are very pleased to announce that Caring Matters Now has been awarded a £4,000 grant from Jeans for Genes — a national children’s charity which raises money for the care of children with genetic disorders. In return for the grant, we need to raise awareness about Jeans for Genes Day and motivate the public…
Over the past 12 months Caring Matters Now has been developing contact with Nevus Outreach, which is a US based support group for CMN. In November 2009 Mark Beckwith, the Executive Director of Nevus Outreach, attended our CMN Liverpool family day. He was so enthused having met our families and seen what our support group…
