Hi, I’m Jack Bowie, and I’m 13 years old. I want to share my story about living with Congenital Melanocytic Naevi (CMN). When I was born, I had a large CMN on my scalp and some satellites on my legs. When I was just six weeks old, I had to go to Great Ormond Street…
This year we’ve had nothing but great feedback from our ‘fundraising families’ about the Inflatable 5k Challenge; so we wanted to encourage everyone to get involved in this fun fundraising event!
In light of the recent CMN research breakthrough, we now have lots of work to do as we continue to partner with Prof. Veronica Kinsler. As a charity we are aiming to raise £500,000 over the next 4 years. We are so close to finding a treatment for CMN; you can join us on our…
I was born in 1953, the youngest of four. My mother was two months from her 40th birthday. I was born with a CMN covering my neck, my shoulders, and the top half of my back. I also had a large mole on the inside of my thigh and a mole the size of a…
Just one week on from announcing the research breakthrough Prof. Veronica Kinsler has made, we have so much to celebrate; the impact, exposure and response from our community has been overwhelming…
Professor Veronica Kinsler and her researchers at the Francis Crick Institute and Great Ormond Street Institute of Child Health have published an article in the Investigate Dermatology Medical Journal detailing a huge breakthrough in their CMN research work.
Professor Veronica Kinsler and her researchers at the Francis Crick Institute and Great Ormond Street Institute of Child Health have published an article in the Investigate Dermatology Medical Journal detailing a huge breakthrough in their CMN research work.
Hanna, 7, was born with a large dark lesion covering her back, stomach and thighs. Her skin is very itchy and dry with large lumpy modules making everyday life debilitating, and she can find it difficult to sleep at night. Hanna’s skin samples have been used to help advance the CMN research and develop a…
Elijah, aged 10, was born with CMN on his scalp, which is very dry, fragile and cuts easily. He has to be monitored constantly and be very careful in the sun. In 2023 Elijah had a melanoma scare which was thankfully a false alarm. His family don’t want to remove the CMN by surgery, but…
3-year-old Ada has 70% of her body covered in CMN mostly on her neck and back. Ada loves swimming and the sea, but needs to take extra precautions for her CMN which includes extra sun protection and wearing good clothing. Her CMN can also be very itchy and painful. When she was just 4 months old, she…
