Charlotte’s Teddytastic Fundraising

The event I organised was a ‘Guess the name of the Teddy’ competition which I held in school for one week at lunch time. People who entered my competition picked a name from a long list and one winning name was drawn by a teacher at the end of the week. I did the competition…

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Phoebe raises awareness of CMN in a big way!

Every year, the school Phoebe attends holds a Speech Competition. The kids have to talk for a maximum of 3 minutes on a topic of their choosing. Phoebe decided it should be about her and her birthmarks. The teacher and the kids – all of whom have never asked Phoebe about her marks because she…

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Genetic Disorder UK Grant

It is with great excitement to announce that Caring Matters Now has been granted £4,000 from Genetic Disorder UK.  This grant is to cover the costs of the CMN Activity Weekend 2014.  The funds will pay for all our children and adult with CMN to attend the weekend free of charge. The CMN trustees are…

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THEY DID IT!

The CMN team took on the skydiving challenge on Saturday 22nd March 2014. The team of 18 met early Saturday morning at Langar Airfield, Nottingham to face their fears! Team members had travelled from all corners of the UK, from as far up as the Highlands, to as low down as Kent! The weather conditions…

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Amanda’s Story

Hi, I’m Amanda and I was born on October 12th 1967 and one of identical twins. A few hours after my birth my parents were told that I had been born with what they called a ‘Swimsuit Naevi’. It covered my back, round my tummy, buttocks and half the tops of both legs. Also, large…

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Holly McCrossan

It is with great sadness that we share the news of Holly McCrossan. On Friday 21st February 2014, Holly (aged 2) passed away after suffering with CMN syndrome. Holly’s parents are overwhelmed from the love and support expressed by you all and they would like to thank everyone who has shown them so much care…

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Ava’s Story

Ava’s Story told by Emma Two years earlier, 2008, I gave birth to my first child, Isaac, which was rather traumatic due to me having a retained placenta so I was apprehensive about giving birth again. However, I was really looking forward to that overwhelming emotion I felt instantly after giving birth to Isaac and…

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