Hello, my name is Harry, I am 11 years old and have CMN. It covers 80% of my body. It was quite a shock for my mum and dad when I was born as they had never heard of CMN, but a few days after I was born a doctor told my mum and dad…
In October 2023, the charity’s Treasurer, Ian, and his 17-year-old daughter Jasmin attended the Royal College of General Practitioners Conference (RCGP) in Glasgow to represent Caring Matters Now.
On the 23rd of September 2023, our wonderful team of trekkers took on the incredible Jurassic Coast Challenge… Trekking 32 miles over 2 days along the beautiful south coast of England. We are all so proud of the team for completing this extreme challenge and raising an amazing £14,221.82
This year the team has just published a really important paper looking at people who hadn’t had a gene identified in their skin – in other words, they didn’t have either the NRAS spelling mistake gene changes or the BRAF spelling mistake gene change.
I first discovered Caring Matters Now back in 2020. I will never forget that day. It was mid covid lockdown and I was getting breakfast ready for my son, who was 2 at the time. We had the radio on in the kitchen and they started talking about this charity called Caring Matters Now, I…
In September, Caring Matters Now went out on the road again to continue to raise awareness of Congenital Melanocytic Naevi (CMN). This time, we travelled to Harrogate, in North Yorkshire, to exhibit as part of the British Dermatological Nursing Group (BDNG) Conference 2023. Despite having one of the smallest stands in comparison to the pharmaceutical…
Hello, my name is Joshua, I am 12 years old, and I was born with Congenital Melanocytic Naevi (CMN) covering 40% of my trunk and I have over 40 satellites throughout my entire body. I am so excited and honoured to be a Young Ambassador for Caring Matters Now. As you can only imagine my…
During this session at our BIG Weekend, we had the privilege of hosting an annual research update from Professor Veronica Kinsler, world leading specialist in CMN.
Hello, my name is Henry. I am 11 years old. I have only known about Caring Matters Now for just over a year, we’ve been to two regional meetings and the Big Weekend 23. My mum wanted to help me understand, that although my Nan has CMN too, that there are other kids that have CMN…
During the week of the 17th-21st July, Maddie, one of our Young Ambassadors joined us for work experience. Throughout her week with us, Maddie had the opportunity to get involved in many aspects of charity life and put new skills into practice including public speaking, journal writing and producing a ‘walk-through’ of the website. Opportunity to…
