Hi everyone! My name is Ronnie, and I’m the new Caring Matters Now mascot! I’ve been given a mission, and I’m so excited to start! My mission has two aims; first, to raise global awareness of Congenital Melanocytic Naevus. I’m going to do this by travelling all over the world, and posting pictures of my…
Our Warrior Princess Written by Eve’s mum – Sabrina After a perfectly normal pregnancy, our second daughter Eve was born on the 8th August 2018 with a very rare skin condition called Congenital Melanocytic Naevi (CMN). This condition is caused by a gene mutation resulting in more than half of Eve’s body being covered in…
Veronica Kinsler is now the Professor of Paediatric Dermatology and Dermatogenetics at Great Ormond St Hospital for Children and the UCL Institute of Child Health. This is great recognition for the CMN research and will continue to raise awareness of CMN worldwide. Some other very exciting news about CMN research at GOSH is that the…
Be the first to get your hands on our brand new ‘how do you C Me Now™’ tees! To celebrate the huge success of our global awareness campaign #howdoyouCMeNow, we have produced branded clothing for all ages. We want to continue raising positive awareness of CMN, giving a clear message to the world; to love…
This Friday our three brave and rather crazy challengers are departing for the ultimate challenge; Stok Kangri Summit Trek, reaching 6,114 metres – which is 219 metres HIGHER than Mount Kilimanjaro! Meet the men taking on this tough challenge….. Nick Inspired by his son James who was born with CMN, Nick achieved his goal of…
So, on Friday 14th June Nick, Norman and Phil will be departing to kick start the Stok Kangri challenge to summit India’s highest trekkable peak at over 6,000m. They will start in Leh the regional capital in Ladakh one of the most exciting Indian mountain regions. This challenge is part of our 7 challenges on 7…
We are thrilled to announce Children in Need has granted our charity £10,000 to fund our support events across the country throughout 2019-20. The funds will support the CMN Conference Weekend costs, along with all the regional gatherings planned throughout the year. Furthermore, Children in Need have agreed to continue the funding for the following…
Photographic Exhibition In 2019 Caring Matters Now launched a photographic series featuring 30 inspiring individuals affected by Congenital Melanocytic Naevi (CMN) from 5 continents, representing 13 countries. The series of images, entitled HOW DO YOU C ME NOW? were exhibited for 12 days in central London at the gallery@oxo, Oxo Tower Wharf. The project began in…
What a storm of media coverage we have experienced this week in preparation for the ‘HOW DO YOU C ME NOW?™’ exhibition launch. Our coverage has gone worldwide, and the response has been phenomenal. SKY NEWS COVERAGE Link to the article on the Sky News website Link to another article on the Sky News website…
Introducing Alkin Emirali Alkin is a screenwriter, director, lecturer and an established martial arts instructor. He was born with a few prominent moles on his face that have proliferated throughout his life. He didn’t meet anyone else affected by CMN until his late thirties, when he connected with Caring Matters Now. Alkin is one of…
