2019 Jessica Ma Award
After much deliberation we are delighted to announce that the winner of the 2019 Jessica Ma Award is……..
Details
Join us in raising global awareness of CMN in conjunction with Rare Disease Day 2020
In conjunction with Rare Disease Day 2020, Caring Matters Now is partnering with CMN patient support groups across the world to raise global awareness of Congenital Melanocytic Naevus… and you can join in with us!
Rare Barometer H-CARE Survey
As part of our alliance with Eurordis, we are asking all our CMN members to consider taking part in this survey.
HOW DO YOU C ME NOW?™ CELEBRITY AWARENESS CAMPAIGN
WE have some very exciting news to share with all our members and supporters. Throughout December, we are seeking celebrities to help raise the profile of CMN through social media platforms. Alongside raising positive awareness of CMN, our aim is to: give a clear message to the world; to love the skin you are in!…
Stacey’s Story
Hi, I’m Stacey and I was born with a large bathing trunk nevus and multiple satellites all over my face and body. Despite being different to other kids I had a really good childhood and I owe so much of this to my parents. Mum and dad never treated me any different. We went on…
Christmas Gift Campaign 2019
The festive period is a time for giving gifts to family and friends. Instead of buying unwanted gifts such as socks or sweets, hankies or hand lotion, why not donate the gift amount to Caring Matters Now. You will receive a gift voucher for the amount you donated, which you can send onto your family…
CMN Conference 2019 Review
In July we held our first residential support conference at Liddington PGL Conference Centre with 112 attendees. The crammed packed 3-day programme catered for all ages, including fun outdoor pursuit activities for the children and teens, off-site activities for our adult members, psycho-social presentations and workshops for parents, adults and teens affected by CMN, plus…
A message from Ronnie!
Hi everyone! My name is Ronnie, and I’m the new Caring Matters Now mascot! I’ve been given a mission, and I’m so excited to start! My mission has two aims; first, to raise global awareness of Congenital Melanocytic Naevus. I’m going to do this by travelling all over the world, and posting pictures of my…
Eve’s Story
Our Warrior Princess Written by Eve’s mum – Sabrina After a perfectly normal pregnancy, our second daughter Eve was born on the 8th August 2018 with a very rare skin condition called Congenital Melanocytic Naevi (CMN). This condition is caused by a gene mutation resulting in more than half of Eve’s body being covered in…
Exciting News for Dr Veronica Kinsler and the CMN Research
Veronica Kinsler is now the Professor of Paediatric Dermatology and Dermatogenetics at Great Ormond St Hospital for Children and the UCL Institute of Child Health. This is great recognition for the CMN research and will continue to raise awareness of CMN worldwide. Some other very exciting news about CMN research at GOSH is that the…
