In June 2024, Fiona and Callum attended the Appearance Collective Conference in Bristol. By nature, this conference was different to the conferences we usually attend. Instead of being geared towards educating medical professionals about CMN, we had the opportunity to showcase our Support Initiatives as part of the Appearance Collective.
Our volunteers Helen and Rebecca attended the BDNG conference in Harrogate for the second year in a row. Again, this year, the BDNG conference gave great opportunity for many meaningful conversations and networking with medical professionals!
This year, our charity CEO- Jodi, Tracy (a Caring Matters Now Trustee) and Michelle (our North West Regional Contact) attended the RCGP in Liverpool.
The transition to adult services can be a daunting process for patients and parents. We created this Self-Advocacy Pack to empower our young adult members with the knowledge and tools needed to effectively manage their healthcare, communicate their needs, and navigate adult healthcare services.
In April 2024, we decided to merge the Regional Gatherings for London and the South East, and host a joint get-together at The Science Museum in London.
The NHS England Rare Disease Collaborative Network for Mosaic Disorders (RDCN-MD) is a network of local dermatologists who understand Mosaic Disorders, such as CMN.
In July 2024, Caring Matters Now held its North East England regional gathering at the beautiful Newham Grange Country Farm in Middlesborough.
On Saturday 19th October we hosted our annual Support Contact Training Day online, inviting all Caring Matters Now volunteers to the morning session and having a focused afternoon for our Support Contacts to think about their next events.
My name is Steven Bouris. I am a Resilience and Self-Empowerment Motivational Speaker and Author. I was born in the 1980s with a large CMN on my forehead. My story is about the challenges I faced growing up with my birthmark, how I suppressed my emotions and felt shame which changed who I was as…
Joshua was born with Congenital Melanocytic Naevi (CMN) covering 40% of his trunk and has over 40 satellites throughout his entire body. Throughout the past year Joshua has been taking on a series of fundraisers to raise awareness and money for Caring Matters Now.
