Jeans for Genes Awards Grant

We are very pleased to announce that Caring Matters Now has been awarded a £4,000 grant from Jeans for Genes — a national children’s charity which raises money for the care of children with genetic disorders. In return for the grant, we need to raise awareness about Jeans for Genes Day and motivate the public…

Details

Nevus Outreach Conference in Dallas

Over the past 12 months Caring Matters Now has been developing contact with Nevus Outreach, which is a US based support group for CMN. In November 2009 Mark Beckwith, the Executive Director of Nevus Outreach, attended our CMN Liverpool family day. He was so enthused having met our families and seen what our support group…

Details
My story by Sheila Mackenzie

Sheila’s Story

I am an older mother; Eva was born when Colin and I were in our forties. She was the little girl we had waited for, for so long! I went into hospital on the eve of my birthday. The labour was long but little did I know that this procedure would go on through the…

Details

Eva’s Story

My name’s Eva and I am 13 years old. I was born on the 14th May 2003, which is actually my mum’s birthday! My hobbies include; running, cycling, swimming, art, singing, drama, dance and guitar. I want to be an actress, singer and dancer when I am older but I would also like to be…

Details

How we raise and spend our money

How we raise our money The short answer is – we rely on you! Last year, we were really worried that Dr. Kinsler’s research would stop due to lack of funds. We asked everyone to pitch in and you did! As a result, we had our best fundraising year yet. Over £44,000 was raised. Later…

Details
Lucy & Fay Hardwidge

Lucy’s Story

I had a very good and healthy pregnancy and I was a little upset at the thought of losing my bump but at the same time extremely excited about meeting our new arrival. I was four days overdue and with my blood pressure rising the decision was made to induce labour, so on Sunday 13th…

Details

Exciting Developments at Caring Matters Now

Well, as you may have already seen the Caring Matters Now Support Group has developed immensely over the past 2 years, thanks to all the hard work and commitment of the volunteer Trustees, support contacts and the CMN members. The fundraising efforts of all the CMN families has been tremendous and as a result, has…

Details

Barry’s Story

Hi, my name is Barry, father of Shelley. Shelley is a twin. She and her brother Mark were born on the 30th June 1974 at the Queen Victoria Hospital, South Africa. Although it is 35 years ago, I vividly remember my wife Marion and myself driving down to the Hospital at 5.30am on a Sunday…

Details

Claire’s Fundraising Story

We first heard about Caring Matters Now through the interview that Jodie Unsworth & Dr. Kinsler did on This Morning and since watching the program we have been in contact with the charity & they have really helped us by showing us that we are not the only ones in a sometimes difficult situation. It…

Details