My story by Ryan (with a little help from mum) I was born on the 10th December 2003 with CMN and NCM. My birthmark covers my bum and I have hundreds of smaller moles all over my body. The moles on my brain also cause me to have learning disabilities and I also have ASD.…
As a teenager with CMN, I have been through a lot, including name calling and mimicking. My CMN is located on my nose and right cheek. I had my first of 6 operations at 8 months of age at Great Ormond Street Hospital, all performed by the wonderful Mr Bulstrode. I first attended a Caring…
Can we please ask you to take a little time to participate and help us all better understand the support needs of you, as parents of children with CMN.
We are pleased to announce that Caring Matters Now has a guaranteed place in the 2021 Virgin Money London Marathon.
Hello, my name is Cheryl and I was born with CMN all over my body. I did not have CMN on my face when I was born; they started to develop a few weeks after birth. Up until around 11 years old I was a happy child and people staring or asking me questions about…
On 26th – 28th June 2020, we held our first ever online CMN Conference. We welcomed 82 families and individuals with CMN to our programme of events – it was wonderful to see you all!
We are excited to announce that Ronnie the Bear has had babies (!!) – and we now have lots of Ronnie the Bear’s ready to be loved by all our members and supporters. You can now purchase your very own Ronnie the Bear.
We are excited to launch the Young Ambassadors Programme for all registered young people affected by CMN (13 to 19 years).
Melanoma arising in people affected by CMN is very difficult to treat. Based on knowledge of the genetics of CMN a drug has been used recently to try to treat melanoma in children, with some good effects, but it is usually not strong enough to reverse the melanoma completely. Other drugs are therefore needed to…
We’re inviting you, your family and friends to take part in the 2.6 Challenge from Sunday 26 April to help Caring Matters Now to continue its work supporting children and adults affected by CMN.
