To all the great team at Caring Matters Now, Well as you can see from the photos we finally did it, Harvey’s hair has been cut short. It’s something we always said we would do just before he started school.  May 25th was quite an emotional day for us as a family as Harvey has [...]

The CMN support group hold support days across the UK throughout the year. The aims of the support days are to: Give one-to-one support to those affected by CMN and their families Give medical advice to those affected by CMN and their families Give an opportunity for CMN members to meet and develop friendships The [...]

The CMN support group hold support days across the UK throughout the year. The aims of the support days are to: Give one-to-one support to those affected by CMN and their families Give medical advice to those affected by CMN and their families Give an opportunity for CMN members to meet and develop friendships The [...]

** No attendance from Dr Kinsler at this event** The CMN Chat & Play Days are similar to that of the CMN Support Days but without the attendance of Dr Kinsler.  Organised by the regional support contact and attended by some of the CMN trustees. The aims of the Chat and Play Days are to: [...]

A word from Luke: “Carrying the Olympic torch was amazing, fun and exciting. I cant believe I got nominated never mind being picked. Mum always says I am an inspiration but I have never believed it. I know I have CMN and 12 years of operations is not nice and I wish I never had [...]

As a result of Jodi coming into the exciting post of Chief Executive for Caring Matters Now Support Group, she is now unable to continue being Chair of Trustees, which is the position Jodi has fulfilled since the support group was established. As I’m sure you are aware, the Chair of Trustees has the responsibility [...]

As you are probably already aware, Jodi Unsworth is the original founder of Caring Matters Now back in 1996. Jodi, who was only 15 at the time and her parent’s took on the role of supporting other families affected by CMN. Since then the support group has developed immensely and today has over 350 families [...]

As Caring Matters Now continues to grow from strength to strength, it is vital that we have a strong team of trustees who are dedicated to developing the charity, enabling our members to receive the best possible support. It gives me great pleasure to introduce our most recent trustee to join the team, Andy Selwood. [...]

For the past number of months, the CMN trustees have been keen to increase the support for our teenage members. All our members are very important to us and we are very aware that teenage years can be difficult, so it gives me great pleasure to introduce our new teenage support contact, Katie Arends. Katie [...]

Yes, you read the title correctly, 7 challenges across 7 continents, a unique theme for future CMN Challenges. Over time we plan to conquer seven varied challenges on seven continents allowing everyone the opportunity to participate, so no excuses! Mt Kilimanjaro – Done and Dusted! With thanks to the hugely successful and dedicated team back [...]