Hanna, 7, was born with a large dark lesion covering her back, stomach and thighs. Her skin is very itchy and dry with large lumpy modules making everyday life debilitating, and she can find it difficult to sleep at night. Hanna’s skin samples have been used to help advance the CMN research and develop a…
Elijah, aged 10, was born with CMN on his scalp, which is very dry, fragile and cuts easily. He has to be monitored constantly and be very careful in the sun. In 2023 Elijah had a melanoma scare which was thankfully a false alarm. His family don’t want to remove the CMN by surgery, but…
3-year-old Ada has 70% of her body covered in CMN mostly on her neck and back. Ada loves swimming and the sea, but needs to take extra precautions for her CMN which includes extra sun protection and wearing good clothing. Her CMN can also be very itchy and painful. When she was just 4 months old, she…
We recently heard from one of our members, Kathy, who shared with us a recent event she held with her friends to share with them all about her CMN and Caring Matters Now. Take a read to find out what she got upto.
This paper suggests “…it might be more important for people with CMN to make sure their Vitamin D levels are good than it is for the average person…” and “that all children with CMN should take a Vitamin D supplement throughout the winter months.” To read the full paper follow this link. Watch an explanation…
My Journey to Self-Acceptance: Embracing My Uniqueness By Naava Agnes, age 23 Growing up in a small village in Kampala, Uganda, I was born with a congenital melanocytic nevus (CMN) on my face. It was a constant reminder that I was different, and it seemed like the world was always staring back at me. People…
Last year, Maddie completed the Dale Carnegie course, Level TWO of our Young Ambassador Programme!
This year we want to provide all our members with brilliant NEW opportunities to challenge yourself and raise funds for Caring Matters Now. We have 800 events across the UK you can choose from!
Throughout Rare Disease Month, we invited our members and social media followers to DONATE and SHARE this image to raise the profile of CMN as a rare disease!
Living with CMN or parenting a child with CMN can feel quite overwhelming and stir up a whole range of emotions such as fear, anxiety, and worry. As a charity, we want to support our members to reach their full potential and help them to develop key social and emotional life skills.
