Midlands Regional Gathering
Date: Sat 3rd & Sun 4th Oct 2026 Location: The Caring Matters Now BIG Weekend 2026 at Arden Hotel, Birmingham You are invited to our BIG WEEKEND 2026! Click here for More information.
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Scottish Highlands Regional Gathering
Date: Saturday 8th August 2026 Time: 11:30am Location: Blair Drummond Safari Park, By Stirling, FK9 4UR You are warmly invited to join us at our Scotland Regional Gathering, where you will get to meet other families from your region and chat with the Scotland Regional Contact (Lorna Caldwell) whilst enjoying a great day out. Our Head…
Lily and Martha’s friendship
I think the first time Lily and Martha ‘met’ was through the Caring Matters Now Online Baby and Toddler group. They then met in person at the North East Regional Gathering at Newham Grange Farm this summer. They hit it off straight away!
Appearance Collective Conference, Bristol June 2024
In June 2024, Fiona and Callum attended the Appearance Collective Conference in Bristol. By nature, this conference was different to the conferences we usually attend. Instead of being geared towards educating medical professionals about CMN, we had the opportunity to showcase our Support Initiatives as part of the Appearance Collective.
British Dermatological Nursing Group (BDNG) Conference
Our volunteers Helen and Rebecca attended the BDNG conference in Harrogate for the second year in a row. Again, this year, the BDNG conference gave great opportunity for many meaningful conversations and networking with medical professionals!
Royal College of General Practitioners (RCGP)
This year, our charity CEO- Jodi, Tracy (a Caring Matters Now Trustee) and Michelle (our North West Regional Contact) attended the RCGP in Liverpool.
Self-Advocacy Pack for young adults with Congenital Melanocytic Naevus (CMN)
The transition to adult services can be a daunting process for patients and parents. We created this Self-Advocacy Pack to empower our young adult members with the knowledge and tools needed to effectively manage their healthcare, communicate their needs, and navigate adult healthcare services.
London and South East Regional Gathering April 2024
In April 2024, we decided to merge the Regional Gatherings for London and the South East, and host a joint get-together at The Science Museum in London.
The NHS England Rare Disease Collaborative Network for Mosaic Disorders (RDCN-MD)
The NHS England Rare Disease Collaborative Network for Mosaic Disorders (RDCN-MD) is a network of local dermatologists who understand Mosaic Disorders, such as CMN.
North East Regional Gathering July 2024
In July 2024, Caring Matters Now held its North East England regional gathering at the beautiful Newham Grange Country Farm in Middlesborough.
